MS Society Awards 2018

The first thing I would like to say is… Wow! Just wow about all the truly amazing people that I was so privileged to meet yesterday (Friday 27th April 2018) at the Ms Society Awards.

Hey everyone, how are you all doing?! As always leave me a comment below and I’d love to connect with you ☺️

Let’s to back to the middle of March 2018, I’d just got home from an Aldi food shop with mum when I received an email from the MS Society congratulating me on my nomination for the awards and then continuing by saying that I had been shortlisted as a finalist!

My first thought…. “What!?!?!” “Okay, it’s a spam, or a joke right?!” I sat down with my mum and read it properly. We were both overwhelmed with excitement! Just wow!

I would travel to The County Hall London to attend an awards ceremony celebrating the fantastic work people do for the MS Society, all charitable.

The awards included, Inspiration Award of the year, Young Carer, Campaigner, Employer of the year, Digital media (my category) and many more.

Mum and I decided to stay over in London on the Friday to make it an experience and have a little adventure on Saturday.

We booked a stay at The Park Plaza hotel County Hall, we had a beautiful room that overlooked the London Eye, Big Ben and the Houses of Parliament. We didn’t actually close the curtains all night as it was just so beautiful!

Once we’d got prepared and ready for the awards, we headed out (not before having a little pic beforehand πŸ™‚πŸ§‘

When we arrived…

What can I say.. everyone that we met and engaged with were the loveliest people I’d ever met! The atmosphere was electric and just full of love and joy. I met to team of Digital Media and Content, which for me was such an honour.

What I do on here and my YouTube channel and just basically talking about MS is something I am so passionate about, spreading awareness about MS, talking about to everyone and connecting with people to tell THE TRUTH about MS is something I want and will pursue. I always try and remain positive and I love being positive, however people who don’t understand or know about MS need to be aware of the truth behind the illness too… MS doesn’t have me, however I am mindful and I listen to my body and that enables me to live life the way I’d like to. πŸ™‚

I met the gorgeous Frances who nominated me, I literally threw my arms around her! I was just so delighted and grateful. Followed by Chris and Liz who are also part of the team, such lovely people and we all had such a laugh.

The awards themselves were just magical is how I would describe them. I’ve never seen so many wonderful, courages, talented, inspiring people in one room. All of their stories moved me and I believe we are all champions/winners for doing what we do for MS.

The other people in my category was hilarious and lovely. It was amazing to chat to them and find out more on what they do.

Celebrity Spotting…

I was beyond excited to meet the fab Scott Mills during our afternoon. He again was hilarious and having a selfie was definitely a highlight!

And presenting my awards… Jane Felstead (known for being in Made In Chelsea) I was dying to meet her all afternoon and when I realised she was handing out the award I was beside myself! We had such a wonderful chat and she’s such a wonderful person, it was great to meet her.

Overall the MS Society Awards were just THE best event I’ve ever attended.. if we could all gather up in one room every weekend I’d definitely be there.

It just goes to show, there are positives in MS… It brings people together in unity and that.. for me is the biggest positive out there!

I hope and pray one day our paths cross again!

Now… Here are some pics πŸ˜‚πŸ§‘πŸ€—

#MSAwards2018 #KissGoodbyetoMS

All my love always,

Hannah xx

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Re-starting MS treatment

Hello Everyone, how are you? I hope you’re all having a wonderful week? Its a beautiful warm, sunny day here in the UK, which makes a pleasant change πŸ™‚.

As always leave me a comment below and then we can connect as I love connecting with you all πŸ™‚

So… As the title would suggest. I’m re-starting MS treatment or DMT (Disease Modifying Therapy). With Multiple Sclerosis Awareness week coming up I thought I’d write a blog post about treatment this week and then create a video for my YouTube channel next week.

So let me take you back to when I first tried an MS treatment. It was back in 2015 when I had not long been diagnosed, I was given a few options of treatment and I chose Techfidera, which is a daily tablet and then you increase the dose after 2 weeks (correct me if I’m wrong)

Out of the treatment options that I was given, Techfidera seemed to be the less toxic and less side effect option — boy was I wrong!

So I started taking Tech and for the first couple of weeks I had no side effects, it was great! I had not long been diagnosed with MS so I was still trying to figure things out and get my head around things, but thankfully the medication wasn’t causing me any bother. Until I increased the dose.

I can’t remember the dosage for it now, but when I increased I started having some really awful side effects. The main one was waking up in the middle of the night in agonising pain in my stomach — this went on for a few days and my MS nurse at the time told me to stop the treatment for a week, take a break and then try again. I was also told to try eating a fairly big meal before taking the tablet so that my stomach had something to line it.

I tried everything (George helped a lot!!) Peppermint tea, camomile tea (that used to work) and sliced apple — these were the only things that would work to settle my tummy enough for me to sleep.

After the second week of this routine I was utterly exhausted and decided to stop the treatment altogether. Now I know I could of maybe persevered a bit more, but my body was giving me a sign and I chose to listen… I mean as soon as I stopped the treatment, the pain went, isn’t that funny?

After that experience and not really having many people to talk to, I went on not being on treatment. At that point MS wasn’t really affecting me and I was living a relatively normal life and my Neurologist at the time allowed me to continue without treatment.. I knew he wasn’t overly happy with my not being on any treatment but he couldn’t force me to be on it.

The end of 2017 and in that year I’d had 4 relapses (thankfully none of them causing any permanent damage.)

I had done some more research into MS treatments to see if there were any new ones (also I had gained a few new MS friends who could tell me of their experiences too) and I wanted some more information on a drug called Copaxone.

My Neurologist was really supportive and gave me some leaflets on the drug and he also told me a bit about it and said that it’s probably the only drug with the least side effects… This is exactly what I needed to hear! There is only a 38% chance of it working and reducing relapses, however I may only need that 38% so that’s fine for me.

I’ve already decided that if it doesn’t help/work then my next option with be Tysabri which again I know people who are on it and getting on okay.

So, the drug. Its either daily or 3x a week injections, which need to be stored in the fridge and then taken out 1/2 hour before you use them. Its self monitored so I’ll be doing the injections at home. I’m told its a little bit like having insulin (the needle that is) and the injection site may become a little sore.

I have all my booklets to read through, as well as am injection diary that I need to fill out everyday. I will be seeing my MS nurse regularly to check on the treatment, and she will be teaching me how to self inject safely.

I feel positive about this and if this is going to help my MS then I’m all for it! I feel confident to try again and I’m in a better head space to learn and understand it all too.

Would any of you be interested to get updates on the treatment and how I’m finding it? Like an online diary? Let me know πŸ™‚

And that is the treatment that I have decided to try, I’d be really interested to hear any of your treatment options.. or if you have another invisible / chronic illness then do you have special treatments to help?

I’m sending you lots of love always

Hannah xx

April Link Up Party

Hey Everyone! Long time no speak, how are you all? As always leave me a comment below and then we can connect πŸ™‚

Yay for another lovely link up with the lovely Sheryl from A Chronic Voice. I always love these monthly prompts and find it such a joy to read others.

Let’s get started πŸ™‚

Here are this months prompts (above)

Marvelling

I would say that this month I have been marvelling at the fact that I’m going to be attending the MS Society Awards 2018 as a finalist… Even just typing that shocks me.

I still don’t know who or how I was nominated, and I still sometimes think, why me? I write on here, connect on social media and create me YouTube videos because I love to do it.. I love talking about MS and giving MS a voice to people who have no idea what we have to go through every single day and how strong we are to remain so positive also.

My passion and dream is to one day become a spreaker or writer on more of a full time basis — that’s definitely the dream but for now this is the main thing that I’m marvelling over.

Splurging

Lol. Well with still working on reduced hours (I’ll be talking about that in another blog post) I’m not really getting much money to splurge on things (apart from my weekly grocery shop, for me that’s always exciting to receive 🀣)

For me… I’ve been splurging “time” and “energy” recently. I’ve been spending time with friends and family having wonderful times, however I have felt recently that I’ve “spent up” and now need to work on increasing my energy and time levels back up again. It was all so worth it though and being mindful to my body I knew when I need to have little breaks.

Continuing

Recently I’ve been continuing to slowly build up my hours at work. I’m now working 5 hours a day 4 days a week and I will be honest… Its been a little tough to adjust to, however I know with time it will get better and I’m so honoured and lucky to have such s supportive work team and manager who allow me to do things in my own time. And I’m really proud of myself for achieving this and still remaining strong and positive throughout 2018!

I’m also continuing my motto of “Not My Problem” I know some of my other lovely friends and followers are using this motto — it’s really great and I find it’s really helping me!

And finally continuing to love each and every day, one way or another. Of course there are times when we get angry, upset or frustrated… However there is ALWAYS one thing to be happy about in ever single day! Even if it’s something really small like.. ‘you had a rubbish day at work, so you treated yourself to a delicious dinner or watched your favourite TV show” these are the things I talk about. πŸ™‚

Balancing

Now, there a couple of things that I’ve been trying to balance this month and one is going well…

Work like and home life with a chronic illness

Since I’ve been working four days a week, I’ve noticed that I’ve been able to have more of a an actual life! I’ve had the energy to see friends, go shopping and hang out like I used to because I’ve had that extra day to just rest my body and mind.

I feel like I actually have that work/life balance with a chronic illness.. when I was working full time 5 days a week, I was miserable, depressed and all I knew was… Work, home, sleep and repeat. I would be utterly exhausted when I got home and I found it so hard to manage my home and work life. But now.. things are definitely better and I’m much more happier inside and out!

The thing I haven’t been balancing recently is my blog — the thing I love so much which is writing.

I know I will get back to it, I just need to allow my body to adjust to these new hours at work.. I’m still in the stage where when I get home all I want to do is sleep.. but I know like I said before that will get better and then I’ll be back to making more regular blog posts πŸ™‚

Investing

This month I’ve definitely been investing in “time for me” making sure I have self care or self love days everyday. That doesn’t have to be anything too mental.. to me a self love part of my day is relaxing with George and watching “My Virgin Kitchen” on YouTube while we eat dinner.

You can invest in a lot of things but I believe that investing in yourself is the most important and we could all find a little more time to do that πŸ™‚πŸ§‘

And that everyone is my April monthly Prompts πŸ˜ŠπŸ˜πŸ˜„ I hope you’ve enjoyed reading them 😊 I’m going to head over to Sheryl’s blog and see if anyone has linked their prompts to it.. if you haven’t then let me know so I can read yours too.

I hope you have a wonderful week and weekend.

Lots of love

Hannah xx

Things I’ve loved in March!

Hey everyone, how are you all doing? Like I always say, leave me a comment below and then we will be able to connect!

I wrote a post similar to this in January (yes I forgot February lol) and I’d like to keep this up.. I’d also like to see if it helps anyone out there because it’s really helped me to keep my positive attitude by looking back on the month and seeing all the things I’ve loved!

I document each thing that’s made me smile or happy in my Bullet Journal, this makes it easier to look back and see what I’ve been loving.

As you can see in the picture above.. there’s only been specific days where I’ve thoroughly enjoyed, so I’ve documented it down. However I do also try and make sure that every day is enjoyable whenever it may be.

Instead of writing a lot about each thing I’ve been loving, I’ll attach photos and white a little bit about each thing that’s made my day particularly memorable ☺️

Spending time with this man is always memorable! At the beginning of March it was his birthday, we had a lovely meal out with friends and got him s cookie cake, which was delicious!!

Then one Wednesday that we had off we walked to our local Garden centre (the longest walk for me since recovering from this relapse!) And when we got there we enjoyed a delicious piece of cake and a drink each… Just spending time with him and watching the world go by means the world to me ☺️

Spending time with my sister and treating myself to some goodies is always memorable and lovely.. we always have such a laugh when we spend time together! Also I just LOVE No.7 products so this made me very happy πŸ™‚

I think this is the biggest memory from March 2018… I have been shortlisted for an award by the MS Society for their 2018 Awards!!!!! I couldn’t quite believe it when they told me, at first I honestly thought it was a joke! But nope… I really have been selected to be a finalist! I still have no idea who nominated me in the first place.. but what an honour!!

I write my blog posts, Instagram, twitter, YouTube and my Facebook group that I created with the lovely Natalie because I just LOVE to help people.. I love to feel that I’m supporting just one person out there.

When I was diagnosed, I really felt alone.. I didn’t know anyone who was newly diagnosed or my kind of age.. since starting my blog and Facebook group and Instagram lol and Twitter.. I’ve met some truly wonderful people and I just love spreading my support and positivity to all.

So I’m completely blown away by this award, but that won’t stop anything what I already do because I LOVE writing.. it’s one of my passions and I love helping and supporting people and just connecting away πŸ™‚

Family time! I love family time! Here is a picture of myself, my mum, my sister and our beautiful Dally Tilly! All girls together! There’s always laughter when we’re together… Yes even Tilly can smile πŸ™‚

Again, another time spent with family πŸ™‚ here is a picture of me, my sister and our dad one weekend when he and my step mum came to visit us ☺️

Thisbis just a simple photo really.. just opening the window and watching the sunrise. Its just so beautiful and always puts a smile on my face πŸ™‚

Thisbpicture was taken the other day when I went round to a friend’s house for tea and cake.. she set out this beautiful spread and it was simply amazing πŸ™‚ I feel completely blessed to have such amazing and wonderful friends 😊

Now this picture is a funny memory.. but since becoming Vegan, I’ve discovered so many delicious foods to eat!! Everything in this box is vegan (had an Asda home delivery) when people ask me if I miss eating the way I used to…my response is always… Absolutely not! πŸ™‚β˜ΊοΈ

And my final memory for March 2018 is spending time with my beautiful boy Arthur! 🐈🐱 He always comes for cuddles in the mornings and he brightens my day, every single day! 😍☺️

And that everyone is everything that I’ve been loving through March! πŸ™‚

I see some people’s favourites blog posts and videos and their mainly about products, which is great and I love looking at those. However I wanted to document anything memorable that I loved throughout eat month so that I can look back and….. Remember! ☺️

I hope you enjoyed the read,

Sending you all lots of love and hugs &

Happy Easter πŸ°πŸ‡

Hannah xx