Hey everyone, how are you all doing? Let’s have a chat in the comments below? ☺️
So.. this week I have increased my hours at work up to 6 hours!! I’m working 9-3:30 and I’m really proud of myself for getting this far!
Some people out there might think “it’s only 6 hours” but for someone with any kind of condition/illness it’s kind of a big deal!
People don’t seem to understand that it’s not just about working however many hours you work.. it’s before and after too. Now I get up at 6am to get things sorted and to make my morning routine as restful as possible and no stress, so that we can leave the house at 7:30 to get the bus.. then I finish work at 3:30, walk to the bus stop get on the bus and ride the 20-30mins journey home (depending on school kids and traffic) I’m usually home by about 4pm or just after and by that time I’m exhausted! See what I mean?
Anyway this blog post isn’t about that. This week I’ve been struggling a lot with fatigue, also been getting tingling/vibrations in my legs and today (Wednesday) my left leg felt really heavy and I had pins & needles in my foot. I’m not getting worried or alarmed but I know I’ve had a busy week, increasing my hours at work and the beautiful yet hot English weather we are experiencing at the moment.. definitely doesn’t help me.
Going back to today (Wednesday) I was heading into town to get a couple of bits and then onto see my lovely bestie ☺️ fatigue was really getting at me this morning.. but after an energising smoothie later we were almost ready to go.
Today.. I decided to use my stick. It’s collapsible so if I didn’t need it I could fold it away, but I did need it so I used it. It was a real support when I was walking around down, which is great.. but that’s still NOT what this blog post is about.
This blog post is all about how I was treated when I had my stick with me!!
Having an invisible illness we all suffer on the inside but it never shows on the outside — we all just put on a smile and crack on don’t we? No one bats an eye lid, no one helps us or moves out of our way or holds doors open for us.. we appear to be like everybody else.
When I used my stick today I was treated very differently.
I would be walking and someone would be walking towards me and theyd immediately move out of my way smile and apologise even though they weren’t in my way.
The waitress at Carluccios helped me to my seat (I didn’t need help but she felt that she needed to) I asked where the toilets were and she guided me to the disabled ones immediately.
A random lady in the queue at Primark let me go in front of her so I wasn’t standing for too long.
The bus driver lowered the step so I could get on easier and waited for me to have my seat before pulling away.
The little restaurant we stopped off for lunch a customer pulled out a seat for me to sit on.
The taxi driver got out of the taxi, opened the door and got a little step out so I could get into the taxi (it was a van lol) and then drove right up to my door and did the same thing to help me out.
This is what happened today, now… Do you think this would of happened if I didn’t have my stick? No.
I would still be struggling whether I had my stick or not, but because I look “fine” or “well” which don’t get me wrong it doesn’t bother me now (I can go makeup free and not look I’ll which is great!)
But what I’m trying to get at is showing you that when I had my stick with me, I’m treated very differently even though there’s nothing different… It just shows exactly what it’s like living with an invisible illness.. most of the time we just carry on.. no one knows the struggles we face underneath the surface.
It just made me smile a little that my purple floral stick changed so many people’s attitudes and the way they treated me.
The motto of this blog post.. just because we look fine sometimes and I say sometimes because I’m fine and happy and noone needs to worry but sometimes we are struggling.. no one knows because it doesn’t show… So be kind, be thoguthful and be loving.. you have no idea what people are going through.
Sending you loads of love always