Hello everyone ☺️ it’s that time of year again… MS Awareness Week 2019.
I wanted to write a blog post sharing my advice for Newly Diagnosed people and hopefully it can help someone.
I used to blog about being Newly Diagnosed with MS and you can read some of those posts here Multiple Sclerosis & Anxiety
Now, being diagnosed for 5 years this year, I feel like I can’t class myself as Newly Diagnosed, however I still want to help people and bring awareness about it and that you are not alone.
I was diagnosed in 2015, aged 24… The peak of life.
I’m not going to ramble on about my bad times and good times because I have already spoken about this… But what I am going to say is this..
For me MS has been… Restricting, lonely, enlightening, positive, rough, painful, annoying, engaging, acknowledging, wonderful, insightful..
MS has been and still is hard to live with, however we are alive! Life is so precious and I cherish every single day.. even if I’m bed bound or my fatigue is do bad that I just can’t do anything but watch Netflix.
The advice I would give as a young person diagnosed and living with MS is this..
Social Media is your friend.. get on Instagram and come & follow me (@positive_life_with_ms) and many other wonderful humans.
You are allowed to feel bad and have bad days.
You are a badass!
Listen to your body! It is NOT a temple and will give you signs if you over do it.
You don’t have to eat Kale 24hours a day.
It doesnt matter if you can’t do a full skin care routine or even if you can’t wash your hair for a week (yes this has happened to me)
Its okay to cancel plans at the last minute, if your friends don’t get it.. they’re not true friends.
Talk to your MS Nurses or Doctors, they are there to help you.
The MS Society helpline is amazing!
Don’t give up the fight.
Keep living! Even if you were to lie in bed every single day and not move, you could still relapse… Doctor’s and Neurologists don’t know what causes a relapse entirely.
Meal plan and prep (seriously it’s been a game changer for me!)
Prioritise by using energy levels.
Research the spoon theory (this brought me comfort)
Cuddle a pet… Or just get a cat 🐈😂
And lastly… I am always here to message if ever you feel alone… Being Newly diagnosed with something you don’t know about can be hard to handle… But you’re not alone.
I hope this bring someone some comfort and a bit of a giggle.. I’m currently sat in bed, watching YouTube and eating a bit of chocolate… Life is good ☺️
Love and Hugs,