Hi everyone, how are you all this week? I hope you’ve all had a good week and weekend?
I was off work again this last week due to this horrid cold literally wiping me out! But I was back at work Saturday and I was so glad to be back!
On Wednesday 10th October it was #WorldMentalHealthDay2018 raising awareness of Mental Health.
For this blog post o thought I’d talk about the Positives of MS and The Negatives of MS… During my time of being diagnosed with MS I’ve had people say to me “just ignore it” “don’t talk about it” and lots of people telling that talking about the negatives is wrong and we shouldn’t talk about them, however I firmly and strongly believe that’s the biggest problem.. people don’t talk about the hard times of having this condition, we always bottle it all up.
I again strongly feel that the only reason why I am so positive is because I talk about the negatives of MS — I express how shit if can be and how I feel like sometimes my 20’s have been robbed from me… I feel that talking about it has made me more determined to carry on the fight and to do the things that I love to do, remember “With Every Limitation Comes an Adaption” & “Not my Problem” two of my favourite quotes!
Okay.. let’s start. The Positives of MS the main one for me is creating my blog, talking about it and joining Social Media (Twitter and Instagram) and connecting with so many people with all different Chronic Illnesses and making new friends (on Instagram we have a group called #MSSquad — most of us being in our twenties having our Squad makes up feel relatively “normal” and we can express to each other how we are feeling etc.
Appreciating everything life has to offer — so many people take things for granted and I feel that only when you’re hit with a debilitating condition that your mindset changes (climbing the stairs for example) I think people really need to start appreciating the little things more, especially their body because without it.. you will cease to exist. I work very hard every day to listen to my body and look after it the best that I can.
Also side note — whilst I write this I’m Listening to David Bowie Starman — I love this song! Have a listen on YouTube.
Discovering the Bullet Journal — I think if I hadn’t been diagnosed with MS I more than likely wouldn’t have discovered the Bullet Journal (credit to my friend Katie who introduced me) The Bullet Journal helps me in everyday life! I plan my days, meals and keep a track of my MS and it just helps to keep my life as stress free as possible.
Generally I’m a happy, positive person — I just concentrate on my own life, I find that if I start thinking about what others are doing it makes me more stressed and I stop concentrating on “me”… So now.. I just let others do “them” and I do “me”.
Now… The negatives… Like I’ve mentioned these need to be spoken about.
MS is shit… There I got the worst word out first, however it’s not the worst illness out there, Christ.. there are many worse!
But with debilitating invisible symptoms that people can’t see it makes living the condition so much harder.. for me that’s Fatigue especially when people say “oh yeah I know how you feel, I’m tired too” — mate… You have NO IDEA what fatigue is like compared to tired 😂 — don’t get me wrong everyone is allowed to feel tired, just don’t compare your tiredness with my fatigue please.
Isolation. Yep! That’s worse, especially for someone whose in their twenties and occasionally has to say no to going out because they just need to sleep. 2016- most of 2017 were probably my worst years for this, I mean 2017 I was off with 4 relapses and at home a lot. That’s when I decided I wasn’t going to feel isolated anymore and I would join social media to find others like me who I can relate to.
Trying to get people to understand… This is indeed been a negative too, especially like I mentioned above, when people compare… Let me say… Every person with MS or any chronic illness are different.. we are all going things differently.. it has also been hard just talking to people about it in general, I mean it’s very personal thing to talk about, especially when things don’t work etc…
But my passion IS to talk about it! To everyone! If I have my stick or crutch and people ask “what have you done to your leg” I always say that “I have Multiple Sclerosis” I mean their first reaction is “oh no, you poor thing” I respond, “no I’m fine, please don’t feel sorry for me, im grateful for MS”
I talk about MS to anyone who asks me and I try to educate everyone who’s willing to listen and understand.
And… Breathe! Haha! That was a long post.. but the end is this… There are positive and negatives in every situation.. it’s all about adaption and also talking about the hard times… Remember it’s okay to not be okay… Being positive ALL the time is sometimes exhausting in itself.. I think because I’m at peace with MS (Mentally) I am able to be positive and deal with it better than before.
I hope this blog post has been informative, helpful and supportive. Please let me you thoughts below.
Lots of Love Always,