Life with MS – Trip out, Moving Stores & time with my boys!

Hey Everyone! How are you all? How has your week been this week? And I hope you’ve all had a lovely weekend too!

This week for me has been good but rather hectic too. My current job was taken over by a new company and we are moving into a shiny new store on MONDAY!

Its all very exciting, although feels ever so slightly rushed and a little disorganised (we have a lot of “stuff” in our old place and our new place isn’t as big… So trying to get things in is proving a little challenging, however I think it will be much better for business and once we all know how the systems work properly and feel a bit more settled I think we will be just fine!

I think I just feel stressed because it’s all a little disorganised and out of my control really and for me since being diagnosed with MS I like to have control and I like everything to be organised (maybe it’s a little OCD) yesterday I spent majority of the day sorting and organising the best I could and I was completely exhausted afterwards.. but also happy that I managed to help as much as I could ☺️

Our old store has had many memories and has been a lovely place to work and I’m so grateful that we are all sticking together with the move as it’s the people that make it!

I also went to visit a friend on Thursday, which was nice. Had tea and cake and played chess (I’m better at draughts personally as my Nana taught me when I was little) but it was fun none the less.

We also had a trip out with work for some training, which again was a lovely day but quite tiring come the end of it.

And my George 😍 my George got a little promotion where he works and he’s now employed as a permanent professional and I couldn’t be prouder of him! 😍 Last night we had a cheeky Chinese take away and watched a film (well half of it cause it was quite long) and just had a lovely evening ☺️ of course Arthur was with us having all the cuddles too.

So, how has this week been on my MS?

Well it’s been okay so far, yes it’s been semi stressful and tiring, however I’m so grateful and thankful that I finish at 3:30pm and not 5:30pm.. I’ve been exhausted come 2:30-3pm the last couple of days and fatigue has been playing me up in the evenings but I come home, I get changed into something super cosy.. I make a nice cup of tea and relax with my boys so I’m managing things.. I know my triggers, I know I need to relax and remember my quote “NOT MY PROBLEM” because at the end of the day… It isn’t my problem.. I’m not management.. I’m not the boss.. I’m an employee and I will do as much as I can do with this move but will NOT stress myself out! ☺️

Also one final thing, this week’s YouTube video is all about my Bullet Journal it will be live on my channel at 5:30pm UK time — if you haven’t checked out my YouTube then click on the link below and have a look at my videos πŸ™‚ chatting about MS & hopefully helping people — I’d love to reach 100 subscribers by the New Year πŸ™‚

An Ordinary Girl With MSYouTube link

Let me know in the comments how your week has been and we can chat πŸ™‚

Sending lots of love always

Hannah xx

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A More Relaxing Week & MS Appointments

Hello Everyone! Happy Sunday, how are you all this morning?

I am feeling really quite good at the moment, I’ll link to a previous blog post about being 1 year with NO relapses! 1 Year NO Relapses I don’t know whether its the Copaxone injections that are making me feel good (when talking to others about it they’ve mentioned that it hasn’t made them feel better, just reduces their relapses) but of course EVERYONE with MS is different so I don’t solely go by other peoples main experiences.

I feel like its a combination of things that are helping me to feel well…great! Reducing stress where possible (I’m really quite relaxed most of the time), Reducing my hours at work, Changing my diet and generally looking after myself.

I feel so grateful, happy and positive and again I think that’s another reason why MS is keeping a low profile at the moment — don’t get me wrong I still struggle with fatigue and nerve pain on a daily basis (In fact I have annoying nerve pain right now) but I’ve learnt to manage it.

Anyway back to this week! (I do ramble!) well, this week has been a lot calmer than the previous week. Work was quite busy on Monday and Tuesday and then on Wednesday I popped over to mum’s and saw her and my sister (my sister and I walked her beautiful dog Tilly and the scenery was just beautiful!) They then came over for dinner and we had a lovely evening.

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Thursday again was a lovely day. A friend from work (used to be my manager but we are very close friends too) came over to see me and we had a lovely catch up that I just loved and then the weekend has involved, working Friday & Saturday and then Saturday night I made myself a lovely Mexican dinner for one and watched this Youtuber that I’m currently obsessed with called Brogan Tate XO – again I’ll link one her videos if you’d like to check her out, she’s amazing and so relatable! Brogan’s YouTube channel

I also have a new YouTube video available today at 5:30pm UK time talking all about my experience with Working & MS and I’d be ever so grateful if you could check that out and maybe share my channel to people and that’s something I really work hard on and would love it if it would just help others maybe newly diagnosed or just going through a hard time — I’d like to think I’m relatable.

My YouTube Channel – An Ordinary Girl With MS

So that everyone has been this week! Today (Sunday) I’m totally relaxing, it’s a gorgeous crisp sunny morning here so I’m going to have a little walk to our local shop and just really rest my body and mind today ready for another busy few weekends! Next week we are training at work as we are moving into a shiny new store so I shall talk about that next week!

I hope you’ve all have a super weekend and a great week!

Lots of Love always

Hannah

A busy few days with MS

Hello Everyone ☺️ how are you all?! I hope you’re all doing okay. Let me know how your weekend was in the comments ☺️

Well since Thursday just gone, I have been very busy! My social life has been rather active and let me just tell you… I rarely go out and since Thursday I’ve been out everyday! πŸ˜‚

So.. Thursday, I was supposed to meet a work friend for ice cream but as I got into town she unfortunately had to cancel due to her daughter being poorly (these things happen as we all know, especially when having a chronic illness) so I popped into work (I had to go there anyway) and my other work friend had some holiday to use up so we hung out instead πŸ˜‚

We popped to the local pub (I don’t drink) but we had some food and chatted all afternoon, he was leaving the opticians we work in the next day (Friday) and I managed to convince him to have a couple of leaving drinks! I mean he’d been there for years and we all didn’t just want to say “okay bye then”

That was Thursday… Friday I saw my lovely mummy and we popped to B&M (that might be a little like Walmart) for a look around, then I went to hers for a nice cup of tea ☺️. She then dropped me into town and off I went for my work friends leaving drinks. I was home by about 8:30 so stilly managed to get a relatively early night ready for Saturday!

Saturday..

Saturday was busy and amazing too, George and I went to visit his mum on her narrow boat during the day and that was so lovely, so peaceful and tranquil and we were also greeted by a family of swans πŸ˜πŸ’– we had some delicious vegan soup and cake and then we were off home.

Saturday evening was another work friends retirement party πŸ˜‚πŸ˜‚ and we went to the greyhound racing, we had a nice table that over looked the track and saw some beautiful doggies πŸ’–πŸ˜ we all had such a good night and I was a little later so I wasn’t in bed as early as I’d have liked.. but still worth it!

Sunday πŸŽ„πŸ€ΆπŸŽ…

Yesterday my sister took me to this lovely garden centre as she said it was THE most festive one she’d been to and she wasn’t wrong! It was amazing! And the best part (apart from having hot chocolate) we got to meet the man himself! Father Christmas!! πŸŽ…πŸŽ…πŸ˜€πŸ˜€ It was amazing and we both loved it!

Ans to end my very busy weekend/few days, George and I curled up on the sofa with Arthur and watched The Incredibles 2 whilst having a cheeky Chinese!

I hope you’ve enjoyed this blog post.. my MS symptoms have been good and not too bothersome which is great! I’m a bit tired today, but I meal prepped yesterday so I don’t have to cook for the next few days! Bonus!

Much Love Always

Hannah xx

A very random Trip

Hello Everyone, how are you all? I hope you’ve all had a lovely weekend?

Well today has bee. Very spontaneous and just amazing really so I just HAD to write about it!

So.. this afternoon I got a call from my dad to tell me that my grandmother had had a fall coming out of church and that he was going to see her.. she was okay but had a nasty cut on her head and grazed knee etc..

I told him to let me know how she was and that I’d ring her tomorrow..

As I was sat with George I just thought about how much she means to me and that one day she wouldn’t be on the planet with us.. George lovingly persuaded me to go and paid for me rail ticket and so… I was off!

I got to the train station and was about to board the train, when I saw that standard class was…. Heaving! So I went to first class & asked the driver if I could upgrade my ticket on the train to which he said “oh you could just give me those flowers if you like” once I explained where I was going a d who the flowers were for he instantly said “oh dear get on of course!”

So.. sat in first class just keeping warm and feeling grateful and then the ticket guard came round. I had purchased my to let with my disabled persons rail card & as he approached me I asked to upgrade my ticket and he said “oh no, I’m not charging you, you’re going to see your poorly grandmother” πŸ˜πŸ˜‚ and with that.. I didn’t get charged!

I arrived at my grandmothers house, my dad picked me up from the station and it was just so lovely to see her.. luckily she was okay, quite chatty and being cheeky as always.. we had a good chat and talked about Strictly in particular 😊

Then it was time to go home… As I waited for my train I met a lovely lady and her little dog called Monty, she was travelling to London.. as the train approached I helped her with her things.. again the train was packed so we got on at first class!

She was quite nervous but suddenly was reunited with friends who she hadn’t seen in a while, we all got chatting which was so lovely and the best part of it… The ticket guard DIDNT come and inspect our tickets! So I didn’t have to pay an upgrade again!

It’s been a very busy day but also quite leisurely and it was so lovely to see my grandmother and I just know she loved it!

I’m now relaxing having a lovely bath watching “Nightmare before Christmas” love that film! 😊😊

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hope you all have a wonderful week!

Lots of love always

Hannah xx

1 Year….NO Relapses!

Hey Everyone, okay so… I have 2 blog posts for you today!! (How Exciting?)

As the title would suggest today is 1 year and 1 day since my last relapse last year!! So obviously I just HAD to write a blog post about it, what I’ve done that has hopefully helped me and kept me relapse free.

As we know MS is an unpredictable condition and relapses can just simply happen without warning and without cause, but I’m going to be talking about changes I’ve made to my lifestyle over the last year, which have really helped me.

Changing my diet and becoming vegan

Now I am in no way super duper healthy 100% of the time (I’m only human) however for me since becoming vegan (Mainly for health reasons) I’ve noticed a massive change, which has been fantastic. The main one for me is dairy, since cutting out dairy I feel that really has made a massive change, as we all know and study after study show that dairy products can cause inflammation in the body and once I found this out I decided to cut it out — I don’t really miss much, vegan cheese is okay once you get used to it — I also make my own cheese sauce using Nutrtional Yeast. There have been times where I have had a little dairy but I really try to remain completely vegan and thats when I notice the most benefits.

Reducing my working hours

I reduced my working hours at work at the beginning of the year to 4 days a week and have been gradually increasing my hours and I now work 6 hours a day. I’m very fortunate and lucky that my employers are very supportive and caring, which I know some employers can be a little unsupportive, however since reducing my hours especially down to 4 days a week just having that extra day to rest and relax has made a massive difference and i have been able to be a more reliable member of the team and I love that because I love all of my work colleagues.

Reducing Stress

Now this one isn’t completely avoidable… stress happens to everyone every day, however I’ve been learning and practicing to not let it consume me. I found that when I was stressed out whether that be because of people, work or MS I found that it just consumed me and really affected me.. but now with my motto “Not My Problem” I just try and let it glide over and look out for me basically. When you have a chronic illness you just have to start looking after yourself and being a bit more selfish (I hate that word because I don’t see it as selfish!) I also try and stay off my phone more, or not get involved with what other people are doing — I hate the This Morning programme here in the UK at the moment because its just debate after debate of mostly petty things! (Just my opinion!) I don’t watch anything like that anymore because in this world I do me and look out for loved ones really. With all that, I do feel having a different approach to stress I do feel its helped with my symptoms slightly and yes I still do get angry but I don’t let it fester.

Generally trying to keep healthy

Yep thats right, I’m not and haven’t been exercising a lot or eating a completely clean diet — I’ve just been looking after myself and having lots of self care days.

So… Here’s to hopefully another year relapse free.. but if a relapse comes along…. We WILL deal with it!

A massive thank you goes to friends, family and all my online friends who keep getting me through this ☺️

New YouTube Channel, Family Time and Nerve Pain! :)

Hi everyone, long time no speak! I know I haven’t uploaded a blog post in a couple of weeks, how are you all doing? As always leave me a comment below and we can all connect.

So… Last Sunday was the first day that my new YouTube Channel launchedΒ An Ordinary Girl With MS

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I’ve got 2 official videos uploaded now that you can watch, the first one is all about “My Diagnosis” — what happened, how I was diagnosed and how I felt. The second video is all about “What is MS” — I’ve seen many videos on YouTube explaining what MS (Multiple Sclerosis) is in a rather negative way “You’re going to become disabled”, “Everything will stop working” “It’s incurable” — I mean yes, these phrases might become reality to some, however everyone with MS is completely DIFFERENT!! That’s why in my video I really try a put across the reality of MS in a positive way.

I really hope you can spread the word about my channel and I hope that it brings comfort to some of you too living with MS, or even if you’re not it can bring you some understanding about the condition.

I’ve also had quite a stressful week too — in fact very stressful which in turn has caused my MS symptoms to really flare up, I booked today off work as a holiday so that I could completely rest my body (and write this blog post obvs lol) I don’t want to go into the stresses that I’ve had but yes, I’ve had quite enough for the time being thank you.

I’ve also had some great family times too.

Last Saturday I went up to my hometown to see my dad and Nana where we met the wedding photographer to get him booked for the wedding– seriously it’s getting so close now and I’m so excited! I just can’t wait to marry my best friend in the whole world! We had a wonderful day and I also managed to grab a cheeky first class ticket on the train there and back which was amazing!

It was my little sisters birthday last week and we had a great day visiting a beautiful stately home and a fantastic antique shop (I was in heaven!) We also went to see The Nun too (relatively new horror film — The Conjuring universe) I had a wonderful yet exhausting time another reason why I booked today off.

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And finally… nerve pain! I haven’t had it for a long time and I know that due to the pressures and stresses that I’ve had over the last week, its set things off. I’m actually filming a video about ways to manage nerve pain so I hope you like that too πŸ™‚

I have a lot of hot water bottles, baths, lots of light yoga (stretching really helps), I try not to sit still for long periods because I find the pain gets worse unless I’m literally lying on the floor then that’s okay but I get dizzy after a while. I also fuel myself with lots of anti-inflammatory foods, loads of ginger, literally have so much ginger and cinnamon and dark leafy greens… I really do pump my body full of these foods when my MS is playing up and it really does help.

 

I really hope you’ve enjoyed this light, short blog post this week. Please check out my YouTube channel if you get the chance πŸ™‚ I’m now going to go for a little walk to try and relieve this pain. Hopefully my next blog post I shall be pain-free!

Have a wonderful week.

lots of Love always

Hannah xx

An Ordinary Girl With MS – Is coming to YOUTUBE!

Hello Everyone, how are you all today!? I hope you’ve all had a good week and if you live in the UK then I hope you have a lovely bank holiday.

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So… as the title would suggest An Ordinary Girl With MS is coming to YOUTUBE! (How exciting!!)

I have thought about creating a YouTube channel for a while relating to Multiple Sclerosis because there are a few videos out there but not many. I want people to be able to relate to my videos, find them enjoyable, realistic and also comforting.

Back in 2016/2017, I could have really done with an upbeat, supportive channel like the one I’m creating because back then I was in a rather low place. I just felt there weren’t a lot of relatable videos out there for me at that time with being reasonably newly diagnosed with MS.

So this year 2018 I have decided to create a channel for An Ordinary Girl With MS — this channel can be for everyone living with Multiple Sclerosis, people who are newly diagnosed, people who have family members living with MS or for people who would just like to know what it’s like.

It’s going to be an upbeat channel like I mentioned, however also realistic so if I’m having a ‘bad day’ or I’m not doing too great, then I may possibly film it (If I’m well enough)

I want this channel to be a place for us all to connect and most importantly a place where people don’t feel alone! I’m all about that and together we can fight this condition!

My new channel will launch on Saturday 1st September 2018 with an introduction and then my first video ‘My Diagnosis Story’ will go live on 2nd September 2018.

My channel is going to contain videos about: My Diagnosis, My Treatment, How I am today compared to when I was first diagnosed, What I eat in a day to help my MS, Evening & Morning Routine, The Positives of MS and The Negatives of MS.

I really hope you enjoy my new channel — please follow me on all of my social media platforms where I’ll be updating you each week of different videos.

Instagram:-an_ordinary_girl_with_ms

Twitter:-Β HannahEliza1

I hope you have a great week, and I hope you’re looking forward to my new YouTube channel!

All my Love Always,

Hannah xximg_20180818_0734243052587947129553429.jpg