MS Awareness week 2019

Hello everyone ☺️ it’s that time of year again… MS Awareness Week 2019.

I wanted to write a blog post sharing my advice for Newly Diagnosed people and hopefully it can help someone.

I used to blog about being Newly Diagnosed with MS and you can read some of those posts here Multiple Sclerosis & Anxiety

Now, being diagnosed for 5 years this year, I feel like I can’t class myself as Newly Diagnosed, however I still want to help people and bring awareness about it and that you are not alone.

I was diagnosed in 2015, aged 24… The peak of life.

I’m not going to ramble on about my bad times and good times because I have already spoken about this… But what I am going to say is this..

For me MS has been… Restricting, lonely, enlightening, positive, rough, painful, annoying, engaging, acknowledging, wonderful, insightful..

MS has been and still is hard to live with, however we are alive! Life is so precious and I cherish every single day.. even if I’m bed bound or my fatigue is do bad that I just can’t do anything but watch Netflix.

The advice I would give as a young person diagnosed and living with MS is this..

Social Media is your friend.. get on Instagram and come & follow me (@positive_life_with_ms) and many other wonderful humans.

You are allowed to feel bad and have bad days.

You are a badass!

Listen to your body! It is NOT a temple and will give you signs if you over do it.

You don’t have to eat Kale 24hours a day.

It doesnt matter if you can’t do a full skin care routine or even if you can’t wash your hair for a week (yes this has happened to me)

Its okay to cancel plans at the last minute, if your friends don’t get it.. they’re not true friends.

Talk to your MS Nurses or Doctors, they are there to help you.

The MS Society helpline is amazing!

Don’t give up the fight.

Keep living! Even if you were to lie in bed every single day and not move, you could still relapse… Doctor’s and Neurologists don’t know what causes a relapse entirely.

Meal plan and prep (seriously it’s been a game changer for me!)

Prioritise by using energy levels.

Research the spoon theory (this brought me comfort)

Cuddle a pet… Or just get a cat πŸˆπŸ˜‚

And lastly… I am always here to message if ever you feel alone… Being Newly diagnosed with something you don’t know about can be hard to handle… But you’re not alone.

I hope this bring someone some comfort and a bit of a giggle.. I’m currently sat in bed, watching YouTube and eating a bit of chocolate… Life is good ☺️

Love and Hugs,

Hannah xx

Advertisements

New Store, Nana’s Birthday & Works Christmas Party! #weeklyblog

Hello gang! How are you all? I hope you’ve all had a wonderful week!

Today I am putting up the Christmas tree 😊 (well it’s officially December so it’s okay πŸ˜‚) if you celebrate Christmas when do you put yours up?

So this week has been quite busy for me, our new store opened with work so that’s definitely been keeping me busy and learning the new system, however I’m really enjoying and writing lots of notes so that I can refer back to them if I need to (you must all know by now how organised I like my life to be lol!)

We are a great team and we always work well together, helping each other along.. I always say we are like a family!

By Wednesday (my day off) I was feeling rather tired and a little drained — I had been on the go the last couple of days so I made sure that I had a restful day and relaxed as much as possible.

Thursday was super lovely and exciting! It was my amazing Nana’s birthday and I went up to visit her for the day! My Aunt, Uncle, nana and I went out for afternoon tea at this gorgeous country house called Stapleford Park which is near Melton Mowbray and we had VEGAN Afternoon tea, which was so delicious! It was such a lovely day!

Friday I was back at work learning the new systems.. it’s honestly been going so quickly the days have just flown by! I’m really enjoying learning new things and getting stuck in there and then my lovely George met me after work and we went out for dinner together 😍

There was this new Vegan restaurant in town and we wanted to try it out… Unfortunately it was not to our liking.. I had Mac and Cheese (not as nice as Madeleine Olivia’s recipe) and the rest just wasn’t cooked well enough unfortunately.. we are glad that we went but sadly won’t be going back!

(I had Mac and Cheese, Southern fried seitan and vegan slaw) I think it was just too much also.)

Saturday was our works Christmas Party ☺️ we all went out for dinner and just had such a fabulous evening! They all mean the world to me because of how supportive they’ve been with MS. They are life long friends and I wouldn’t want to be without them in my life!

And today.. Sunday. George is working today so me and Arthur 🐈 are relaxing but also…. Putting up the Christmas tree!! Now that it’s officially December I’m going to put it up, whilst having a Christmas film on in the background.. haven’t decided which one I’ll watch yet!

I hope you’ve all had an amazing week! I can’t wait to tell you all about this coming week!! So much is happening!! Stay tuned for next Sunday’s weekly blog post!

Love and hugs always

Hannah xx

Life with MS – Trip out, Moving Stores & time with my boys!

Hey Everyone! How are you all? How has your week been this week? And I hope you’ve all had a lovely weekend too!

This week for me has been good but rather hectic too. My current job was taken over by a new company and we are moving into a shiny new store on MONDAY!

Its all very exciting, although feels ever so slightly rushed and a little disorganised (we have a lot of “stuff” in our old place and our new place isn’t as big… So trying to get things in is proving a little challenging, however I think it will be much better for business and once we all know how the systems work properly and feel a bit more settled I think we will be just fine!

I think I just feel stressed because it’s all a little disorganised and out of my control really and for me since being diagnosed with MS I like to have control and I like everything to be organised (maybe it’s a little OCD) yesterday I spent majority of the day sorting and organising the best I could and I was completely exhausted afterwards.. but also happy that I managed to help as much as I could ☺️

Our old store has had many memories and has been a lovely place to work and I’m so grateful that we are all sticking together with the move as it’s the people that make it!

I also went to visit a friend on Thursday, which was nice. Had tea and cake and played chess (I’m better at draughts personally as my Nana taught me when I was little) but it was fun none the less.

We also had a trip out with work for some training, which again was a lovely day but quite tiring come the end of it.

And my George 😍 my George got a little promotion where he works and he’s now employed as a permanent professional and I couldn’t be prouder of him! 😍 Last night we had a cheeky Chinese take away and watched a film (well half of it cause it was quite long) and just had a lovely evening ☺️ of course Arthur was with us having all the cuddles too.

So, how has this week been on my MS?

Well it’s been okay so far, yes it’s been semi stressful and tiring, however I’m so grateful and thankful that I finish at 3:30pm and not 5:30pm.. I’ve been exhausted come 2:30-3pm the last couple of days and fatigue has been playing me up in the evenings but I come home, I get changed into something super cosy.. I make a nice cup of tea and relax with my boys so I’m managing things.. I know my triggers, I know I need to relax and remember my quote “NOT MY PROBLEM” because at the end of the day… It isn’t my problem.. I’m not management.. I’m not the boss.. I’m an employee and I will do as much as I can do with this move but will NOT stress myself out! ☺️

Also one final thing, this week’s YouTube video is all about my Bullet Journal it will be live on my channel at 5:30pm UK time — if you haven’t checked out my YouTube then click on the link below and have a look at my videos πŸ™‚ chatting about MS & hopefully helping people — I’d love to reach 100 subscribers by the New Year πŸ™‚

An Ordinary Girl With MSYouTube link

Let me know in the comments how your week has been and we can chat πŸ™‚

Sending lots of love always

Hannah xx

A More Relaxing Week & MS Appointments

Hello Everyone! Happy Sunday, how are you all this morning?

I am feeling really quite good at the moment, I’ll link to a previous blog post about being 1 year with NO relapses! 1 Year NO Relapses I don’t know whether its the Copaxone injections that are making me feel good (when talking to others about it they’ve mentioned that it hasn’t made them feel better, just reduces their relapses) but of course EVERYONE with MS is different so I don’t solely go by other peoples main experiences.

I feel like its a combination of things that are helping me to feel well…great! Reducing stress where possible (I’m really quite relaxed most of the time), Reducing my hours at work, Changing my diet and generally looking after myself.

I feel so grateful, happy and positive and again I think that’s another reason why MS is keeping a low profile at the moment — don’t get me wrong I still struggle with fatigue and nerve pain on a daily basis (In fact I have annoying nerve pain right now) but I’ve learnt to manage it.

Anyway back to this week! (I do ramble!) well, this week has been a lot calmer than the previous week. Work was quite busy on Monday and Tuesday and then on Wednesday I popped over to mum’s and saw her and my sister (my sister and I walked her beautiful dog Tilly and the scenery was just beautiful!) They then came over for dinner and we had a lovely evening.

T

Thursday again was a lovely day. A friend from work (used to be my manager but we are very close friends too) came over to see me and we had a lovely catch up that I just loved and then the weekend has involved, working Friday & Saturday and then Saturday night I made myself a lovely Mexican dinner for one and watched this Youtuber that I’m currently obsessed with called Brogan Tate XO – again I’ll link one her videos if you’d like to check her out, she’s amazing and so relatable! Brogan’s YouTube channel

I also have a new YouTube video available today at 5:30pm UK time talking all about my experience with Working & MS and I’d be ever so grateful if you could check that out and maybe share my channel to people and that’s something I really work hard on and would love it if it would just help others maybe newly diagnosed or just going through a hard time — I’d like to think I’m relatable.

My YouTube Channel – An Ordinary Girl With MS

So that everyone has been this week! Today (Sunday) I’m totally relaxing, it’s a gorgeous crisp sunny morning here so I’m going to have a little walk to our local shop and just really rest my body and mind today ready for another busy few weekends! Next week we are training at work as we are moving into a shiny new store so I shall talk about that next week!

I hope you’ve all have a super weekend and a great week!

Lots of Love always

Hannah

A busy few days with MS

Hello Everyone ☺️ how are you all?! I hope you’re all doing okay. Let me know how your weekend was in the comments ☺️

Well since Thursday just gone, I have been very busy! My social life has been rather active and let me just tell you… I rarely go out and since Thursday I’ve been out everyday! πŸ˜‚

So.. Thursday, I was supposed to meet a work friend for ice cream but as I got into town she unfortunately had to cancel due to her daughter being poorly (these things happen as we all know, especially when having a chronic illness) so I popped into work (I had to go there anyway) and my other work friend had some holiday to use up so we hung out instead πŸ˜‚

We popped to the local pub (I don’t drink) but we had some food and chatted all afternoon, he was leaving the opticians we work in the next day (Friday) and I managed to convince him to have a couple of leaving drinks! I mean he’d been there for years and we all didn’t just want to say “okay bye then”

That was Thursday… Friday I saw my lovely mummy and we popped to B&M (that might be a little like Walmart) for a look around, then I went to hers for a nice cup of tea ☺️. She then dropped me into town and off I went for my work friends leaving drinks. I was home by about 8:30 so stilly managed to get a relatively early night ready for Saturday!

Saturday..

Saturday was busy and amazing too, George and I went to visit his mum on her narrow boat during the day and that was so lovely, so peaceful and tranquil and we were also greeted by a family of swans πŸ˜πŸ’– we had some delicious vegan soup and cake and then we were off home.

Saturday evening was another work friends retirement party πŸ˜‚πŸ˜‚ and we went to the greyhound racing, we had a nice table that over looked the track and saw some beautiful doggies πŸ’–πŸ˜ we all had such a good night and I was a little later so I wasn’t in bed as early as I’d have liked.. but still worth it!

Sunday πŸŽ„πŸ€ΆπŸŽ…

Yesterday my sister took me to this lovely garden centre as she said it was THE most festive one she’d been to and she wasn’t wrong! It was amazing! And the best part (apart from having hot chocolate) we got to meet the man himself! Father Christmas!! πŸŽ…πŸŽ…πŸ˜€πŸ˜€ It was amazing and we both loved it!

Ans to end my very busy weekend/few days, George and I curled up on the sofa with Arthur and watched The Incredibles 2 whilst having a cheeky Chinese!

I hope you’ve enjoyed this blog post.. my MS symptoms have been good and not too bothersome which is great! I’m a bit tired today, but I meal prepped yesterday so I don’t have to cook for the next few days! Bonus!

Much Love Always

Hannah xx

A very random Trip

Hello Everyone, how are you all? I hope you’ve all had a lovely weekend?

Well today has bee. Very spontaneous and just amazing really so I just HAD to write about it!

So.. this afternoon I got a call from my dad to tell me that my grandmother had had a fall coming out of church and that he was going to see her.. she was okay but had a nasty cut on her head and grazed knee etc..

I told him to let me know how she was and that I’d ring her tomorrow..

As I was sat with George I just thought about how much she means to me and that one day she wouldn’t be on the planet with us.. George lovingly persuaded me to go and paid for me rail ticket and so… I was off!

I got to the train station and was about to board the train, when I saw that standard class was…. Heaving! So I went to first class & asked the driver if I could upgrade my ticket on the train to which he said “oh you could just give me those flowers if you like” once I explained where I was going a d who the flowers were for he instantly said “oh dear get on of course!”

So.. sat in first class just keeping warm and feeling grateful and then the ticket guard came round. I had purchased my to let with my disabled persons rail card & as he approached me I asked to upgrade my ticket and he said “oh no, I’m not charging you, you’re going to see your poorly grandmother” πŸ˜πŸ˜‚ and with that.. I didn’t get charged!

I arrived at my grandmothers house, my dad picked me up from the station and it was just so lovely to see her.. luckily she was okay, quite chatty and being cheeky as always.. we had a good chat and talked about Strictly in particular 😊

Then it was time to go home… As I waited for my train I met a lovely lady and her little dog called Monty, she was travelling to London.. as the train approached I helped her with her things.. again the train was packed so we got on at first class!

She was quite nervous but suddenly was reunited with friends who she hadn’t seen in a while, we all got chatting which was so lovely and the best part of it… The ticket guard DIDNT come and inspect our tickets! So I didn’t have to pay an upgrade again!

It’s been a very busy day but also quite leisurely and it was so lovely to see my grandmother and I just know she loved it!

I’m now relaxing having a lovely bath watching “Nightmare before Christmas” love that film! 😊😊

I

hope you all have a wonderful week!

Lots of love always

Hannah xx

1 Year….NO Relapses!

Hey Everyone, okay so… I have 2 blog posts for you today!! (How Exciting?)

As the title would suggest today is 1 year and 1 day since my last relapse last year!! So obviously I just HAD to write a blog post about it, what I’ve done that has hopefully helped me and kept me relapse free.

As we know MS is an unpredictable condition and relapses can just simply happen without warning and without cause, but I’m going to be talking about changes I’ve made to my lifestyle over the last year, which have really helped me.

Changing my diet and becoming vegan

Now I am in no way super duper healthy 100% of the time (I’m only human) however for me since becoming vegan (Mainly for health reasons) I’ve noticed a massive change, which has been fantastic. The main one for me is dairy, since cutting out dairy I feel that really has made a massive change, as we all know and study after study show that dairy products can cause inflammation in the body and once I found this out I decided to cut it out — I don’t really miss much, vegan cheese is okay once you get used to it — I also make my own cheese sauce using Nutrtional Yeast. There have been times where I have had a little dairy but I really try to remain completely vegan and thats when I notice the most benefits.

Reducing my working hours

I reduced my working hours at work at the beginning of the year to 4 days a week and have been gradually increasing my hours and I now work 6 hours a day. I’m very fortunate and lucky that my employers are very supportive and caring, which I know some employers can be a little unsupportive, however since reducing my hours especially down to 4 days a week just having that extra day to rest and relax has made a massive difference and i have been able to be a more reliable member of the team and I love that because I love all of my work colleagues.

Reducing Stress

Now this one isn’t completely avoidable… stress happens to everyone every day, however I’ve been learning and practicing to not let it consume me. I found that when I was stressed out whether that be because of people, work or MS I found that it just consumed me and really affected me.. but now with my motto “Not My Problem” I just try and let it glide over and look out for me basically. When you have a chronic illness you just have to start looking after yourself and being a bit more selfish (I hate that word because I don’t see it as selfish!) I also try and stay off my phone more, or not get involved with what other people are doing — I hate the This Morning programme here in the UK at the moment because its just debate after debate of mostly petty things! (Just my opinion!) I don’t watch anything like that anymore because in this world I do me and look out for loved ones really. With all that, I do feel having a different approach to stress I do feel its helped with my symptoms slightly and yes I still do get angry but I don’t let it fester.

Generally trying to keep healthy

Yep thats right, I’m not and haven’t been exercising a lot or eating a completely clean diet — I’ve just been looking after myself and having lots of self care days.

So… Here’s to hopefully another year relapse free.. but if a relapse comes along…. We WILL deal with it!

A massive thank you goes to friends, family and all my online friends who keep getting me through this ☺️