A little life update.

Hello everyone, happy Sunday. It’s currently 18:01pm here in the UK, how has your week been?

I know the last blog post I wrote was about mine and George’s wedding! Can’t believe we’ve been married almost 2 months — time really does fly (obviously in a great way) Married life is great, to be honest nothing’s really changed πŸ™‚ the only thing that has changed is that when George calls me he always says ‘Hello wonderful wife of mine’, which makes me smile every day.

Yesterday I had a big achievement — I worked my first 9-5 work shift in 2 years! No I’m not increasing my hours, I just offered to help them out this weekend. I knew it wasn’t going to be too busy and I was working with a great friend. It has knocked me a little today, which I knew it would so therefore I’ve been relaxing in bed this afternoon watching movies — I’ve just finished watching ‘Searching’ that stars John Cho, it’s filmed as if you’re looking through a webcam and it’s about a father desperately searching for his daughter who has been missing for 5 days.. it’s gripping, intense and had me on the edge of my seat — I like suspenseful films. I’d highly recommend it.

Imagine got from Google.

Also, a while ago I watched a documentary on Netflix called ‘Minimalism – a documentary about the important things’ this too was amazing — staring the minimalists, two guys who went from being in the corporate world earning a lot of money a year to giving it all up to focus on the important things of life. That too is a real eye opener and shows you how the world is with regards to consumerism and people just buying things to fulfil life.

It really made me look at all the things that I have, I’m grateful for everything that I have, however, I wanted to start following this lifestyle. I love de-cluttering, especially after listening to my audio book Marie Kondo ‘The Magic art of tidying up’ I actually de-cluttered my entire crockery collection a couple of weekends ago. I actually had enough to set up a small cafe! I went through it all and whatever didn’t ‘spark joy’ anymore I neatly packaged it up and put it in a box for charity.

I was left with only the things we needed and that I truly loved. It was so liberating. I really am loving living with less, it makes me appreciate what I have, stops me from spending money unnecessarily and keeps my mind calm.

I’ve also started learning to live a more sustainable lifestyle, I’ve started saving jars after they’ve had produce in them (jam, peanut butter, olives etc) washing them out and using them for other things (quinoa, pasta, cous cous etc), also walking to work as much as I can and having ‘no spend days’.

For me, it’s really great to live for what I need, save money and feel grateful for everything that I have in my life. This is my ‘why’ power for continuing this lifestyle.

Tomorrow I’m going to be talking to my MS nurse about a potential new treatment — Gilenya. This isn’t a definite medication change as my neuro told me that it was my chocie, however, after having the small relapse in March this year, he said that new treatment is an option.

I’ve already got some questions to ask my MS nurse or for her to speak to my Neuro about, but until I’m completely happy then I’ll be sticking with Copaxone. If any of you have had any experience with Gilenya, I’d love your advice πŸ™‚

Anyway, I’ve spoken/written a lot this evening so I’m going to sign off now and will see you all soon πŸ™‚ you can also follow me on Instagram, where I love to connect and build our chronic illness community — it’s such a positive place for me where I’ve met lots of new friends, like here and Twitter πŸ™‚

Have a wonderful new week.

Lots of love

Hannah xx

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Enjoying my Hen Party with MS.

Good Morning everyone ☺️

Happy Sunday! I hope you’ve all had a nice weekend? Let me know what you’ve been up to.

So… Last weekend I had my first Hen Party with my amazing work friends. If you don’t know what a hen party is.. it can also be called a bachelorette party. A celebration for the bride before the bit day!

Yes… It was my “first” hen party because I’m having two πŸ˜‚ I couldn’t invite all of my work colleagues to the wedding because we didn’t have space, which is fine and why we had this party ☺️

All my work colleagues know about MS and know how it affects me. They are the most amazing and caring bunch of humans and made sure I was okay for my Hen.

One of my best friends who I worked with organised the party. Planning things in the afternoon/evening so that I could rest and prepare in the morning.

What did we do?

Because my friends know that I can’t do too many energetic activities they planned for me to go Punting πŸ˜€ we went to Cambridge, which is a city near us where they have a river going through it. There are these long boats called punts that you can hire to use yourself or have tours around the city.

The weather was beautiful and we had a touring punt. Just sat back and relaxed as we had our tour around the city, drinking prosecco and eating strawberries. I even had a little go a steering the punt! πŸ˜†

Everyone made sure I was okay and chose punting because it was restful for me.

After punting we started the exciting part of the night… Cocktail making!

That was such fun! And definitely where all my energy was used, having fun, laughing and just partying with my friends until quite late πŸ˜†πŸ˜€

So how I Enjoyed my Hen Party with MS?

Firstly the night before…

The night before my hen party I relaxed completely. I had an early night and just got as much sleep as possible (I know for some MSers or doesn’t feel like it helps but it does for me)

The morning of the hen party again I rested a lot. Making sure to just take it easy and get ready in good time.

I know this sounds hilarious but I allowed 2 hours to get ready for my hen.. outfit, makeup and hair.. I allowed 2 hours so that I could just take my time and relax whilst getting ready… Stressing out makes my Ms so much worse so I always try and reduce stress as much as possible.

Then during the hen party, if I needed to rest, I would sit down. My friends totally understood. Also I didn’t get completely drunk!

I don’t like alcohol much anyway and can party without it, but also it makes my MS worse when I do. So I had a couple of drinks but then I moved onto diet coke until 9pm and then for the rest of the night I was drinking tap water.

Water kept me hydrated and enabled me to continue to have a good time πŸ˜€

The final thing I will say and how I enjoyed my hen party with MS… For once I didn’t think about MS. I had a great time and knew that I would just deal with the consequences like most of us do.

Enjoy everything about your wedding if you’re planning one ☺️

MS Awareness week 2019

Hello everyone ☺️ it’s that time of year again… MS Awareness Week 2019.

I wanted to write a blog post sharing my advice for Newly Diagnosed people and hopefully it can help someone.

I used to blog about being Newly Diagnosed with MS and you can read some of those posts here Multiple Sclerosis & Anxiety

Now, being diagnosed for 5 years this year, I feel like I can’t class myself as Newly Diagnosed, however I still want to help people and bring awareness about it and that you are not alone.

I was diagnosed in 2015, aged 24… The peak of life.

I’m not going to ramble on about my bad times and good times because I have already spoken about this… But what I am going to say is this..

For me MS has been… Restricting, lonely, enlightening, positive, rough, painful, annoying, engaging, acknowledging, wonderful, insightful..

MS has been and still is hard to live with, however we are alive! Life is so precious and I cherish every single day.. even if I’m bed bound or my fatigue is do bad that I just can’t do anything but watch Netflix.

The advice I would give as a young person diagnosed and living with MS is this..

Social Media is your friend.. get on Instagram and come & follow me (@positive_life_with_ms) and many other wonderful humans.

You are allowed to feel bad and have bad days.

You are a badass!

Listen to your body! It is NOT a temple and will give you signs if you over do it.

You don’t have to eat Kale 24hours a day.

It doesnt matter if you can’t do a full skin care routine or even if you can’t wash your hair for a week (yes this has happened to me)

Its okay to cancel plans at the last minute, if your friends don’t get it.. they’re not true friends.

Talk to your MS Nurses or Doctors, they are there to help you.

The MS Society helpline is amazing!

Don’t give up the fight.

Keep living! Even if you were to lie in bed every single day and not move, you could still relapse… Doctor’s and Neurologists don’t know what causes a relapse entirely.

Meal plan and prep (seriously it’s been a game changer for me!)

Prioritise by using energy levels.

Research the spoon theory (this brought me comfort)

Cuddle a pet… Or just get a cat πŸˆπŸ˜‚

And lastly… I am always here to message if ever you feel alone… Being Newly diagnosed with something you don’t know about can be hard to handle… But you’re not alone.

I hope this bring someone some comfort and a bit of a giggle.. I’m currently sat in bed, watching YouTube and eating a bit of chocolate… Life is good ☺️

Love and Hugs,

Hannah xx

A lovely couple of Days with Family & Les Miserables πŸ˜†πŸ˜±πŸ˜

Hi Everyone! How are we all?!

I’ve had such a lovely few days this week and I can’t wait to tell you all about my adventures!

Monday evening my dad came to see my sister and I for dinner (a long story but I did have a Neurologist appointment on Tuesday but they cancelled it so instead dad came down and we just had a lovely time with him 😊)

We went out to this lovely little pub near where we love and had such delicious food, mint tea (me and megs) and just a fantastic evening ☺️😍

Then on Tuesday dad and I spent the whole day together ☺️ pottering around town, looking round the shops, seeing my sister and finishing off with a little around our Christmas garden centre (it’s beautiful!)

It was such a lovely time and I love spending time with my family πŸ˜πŸ˜ƒ

Wednesday… Well if you follow me on my Instagram account, you will know what I’ve been up to..

Wednesday I took my Aunty to London to see Les Miserables for her birthday & Christmas present!! πŸ˜ƒπŸ˜† We have both been dying to see it and I also treated us to lunch at Mildred’s vegan restaurant.

Omg wow! The show… The show was just spectacular! It was just breathtaking and I’m already looking at tickets to go back again! Haha! The seats we had were pretty good too, you could see the stage very clearly.. we were in the dress circle towards the front.

After the show we hopped into a taxi to one of our favourite places, Liberty’s. It’s just beautiful inside and so big filled with everything from haberdashery to stationary. They also had a Christmas land where my Aunty and I purchased a Christmas bauble.

We then proceeded back to Kings Cross, At Pancras where we had a lovely cup of tea and some food at Fortnum & Masons before riding the train home! It truly was a magical day!

Thursday was a complete day of rest — to be honest I was absolutely exhausted, I love every minute of London but it can be a tad too much at times.

So Thursday was spent watching films, YouTube and totally relaxing so that was lovely ☺️

Friday I went to a friend’s house to help decorate his Christmas tree (he gets stressed when he does it, so myself and another friend volunteered for the job)

We had mulled wine, mince pies (they were vegan) and listened to Christmas music whilst decorating! We had SUCH a great day! These people are work friends and I’d probably go far enough to say that they are my best friends… Nadine has just always been there for me since I started working where I do.. we bonded straight away and always been so close! And Pat has just been the most supportive man friend I think I’ve ever had! We all get on famously and I just am so grateful for them!

Whenever I’ve had a bad day at work or feel a bit rubbish work related, they are always there to make me feel better and cheer me up ☺️ — see.. great work friends!

And finally Saturday night! Saturday night was so incredibly special ☺️ my amazing G cooked me a delicious vegan dinner… AND desert! And we spent such a lovely evening together watching one of my Favourite Christmas films “Jingle All The Way”

With him going to the gym and working shift it’s been a little difficult & we haven’t spent much time together — which I missed dearly so last night meant so much to me.

We also played a few computer games together which I loved too!

I was beyond riddled with fatigue yesterday to the point when I did get home I just fell into George arms and cried (yep… Like a toddler) I get super emotional when I’m tired and do you know what.. George just gives me the biggest hugs, tells me to go and relax and brings me a cup of tea.

I’m just so grateful, blessed, thankful beyond belief to just have amazing people in my life and this week has just been… Amazing!

I hope you’re all as okay as you can be, today I’m relaxing but also popping over to mums for tea ☺️ so that will be nice (she’s got her tree up now too ☺️)

Also if you’d like to see this weeks YouTube video then it will be live at 5:30pm UK time — I’d love it if you could take a look and maybe subscribe — my goal is to reach 100 by the end of the year ☺️

An Ordinary Girl With MS – YouTube

Sending you Much Love always

Hannah xx

New Store, Nana’s Birthday & Works Christmas Party! #weeklyblog

Hello gang! How are you all? I hope you’ve all had a wonderful week!

Today I am putting up the Christmas tree 😊 (well it’s officially December so it’s okay πŸ˜‚) if you celebrate Christmas when do you put yours up?

So this week has been quite busy for me, our new store opened with work so that’s definitely been keeping me busy and learning the new system, however I’m really enjoying and writing lots of notes so that I can refer back to them if I need to (you must all know by now how organised I like my life to be lol!)

We are a great team and we always work well together, helping each other along.. I always say we are like a family!

By Wednesday (my day off) I was feeling rather tired and a little drained — I had been on the go the last couple of days so I made sure that I had a restful day and relaxed as much as possible.

Thursday was super lovely and exciting! It was my amazing Nana’s birthday and I went up to visit her for the day! My Aunt, Uncle, nana and I went out for afternoon tea at this gorgeous country house called Stapleford Park which is near Melton Mowbray and we had VEGAN Afternoon tea, which was so delicious! It was such a lovely day!

Friday I was back at work learning the new systems.. it’s honestly been going so quickly the days have just flown by! I’m really enjoying learning new things and getting stuck in there and then my lovely George met me after work and we went out for dinner together 😍

There was this new Vegan restaurant in town and we wanted to try it out… Unfortunately it was not to our liking.. I had Mac and Cheese (not as nice as Madeleine Olivia’s recipe) and the rest just wasn’t cooked well enough unfortunately.. we are glad that we went but sadly won’t be going back!

(I had Mac and Cheese, Southern fried seitan and vegan slaw) I think it was just too much also.)

Saturday was our works Christmas Party ☺️ we all went out for dinner and just had such a fabulous evening! They all mean the world to me because of how supportive they’ve been with MS. They are life long friends and I wouldn’t want to be without them in my life!

And today.. Sunday. George is working today so me and Arthur 🐈 are relaxing but also…. Putting up the Christmas tree!! Now that it’s officially December I’m going to put it up, whilst having a Christmas film on in the background.. haven’t decided which one I’ll watch yet!

I hope you’ve all had an amazing week! I can’t wait to tell you all about this coming week!! So much is happening!! Stay tuned for next Sunday’s weekly blog post!

Love and hugs always

Hannah xx

Life with MS – Trip out, Moving Stores & time with my boys!

Hey Everyone! How are you all? How has your week been this week? And I hope you’ve all had a lovely weekend too!

This week for me has been good but rather hectic too. My current job was taken over by a new company and we are moving into a shiny new store on MONDAY!

Its all very exciting, although feels ever so slightly rushed and a little disorganised (we have a lot of “stuff” in our old place and our new place isn’t as big… So trying to get things in is proving a little challenging, however I think it will be much better for business and once we all know how the systems work properly and feel a bit more settled I think we will be just fine!

I think I just feel stressed because it’s all a little disorganised and out of my control really and for me since being diagnosed with MS I like to have control and I like everything to be organised (maybe it’s a little OCD) yesterday I spent majority of the day sorting and organising the best I could and I was completely exhausted afterwards.. but also happy that I managed to help as much as I could ☺️

Our old store has had many memories and has been a lovely place to work and I’m so grateful that we are all sticking together with the move as it’s the people that make it!

I also went to visit a friend on Thursday, which was nice. Had tea and cake and played chess (I’m better at draughts personally as my Nana taught me when I was little) but it was fun none the less.

We also had a trip out with work for some training, which again was a lovely day but quite tiring come the end of it.

And my George 😍 my George got a little promotion where he works and he’s now employed as a permanent professional and I couldn’t be prouder of him! 😍 Last night we had a cheeky Chinese take away and watched a film (well half of it cause it was quite long) and just had a lovely evening ☺️ of course Arthur was with us having all the cuddles too.

So, how has this week been on my MS?

Well it’s been okay so far, yes it’s been semi stressful and tiring, however I’m so grateful and thankful that I finish at 3:30pm and not 5:30pm.. I’ve been exhausted come 2:30-3pm the last couple of days and fatigue has been playing me up in the evenings but I come home, I get changed into something super cosy.. I make a nice cup of tea and relax with my boys so I’m managing things.. I know my triggers, I know I need to relax and remember my quote “NOT MY PROBLEM” because at the end of the day… It isn’t my problem.. I’m not management.. I’m not the boss.. I’m an employee and I will do as much as I can do with this move but will NOT stress myself out! ☺️

Also one final thing, this week’s YouTube video is all about my Bullet Journal it will be live on my channel at 5:30pm UK time — if you haven’t checked out my YouTube then click on the link below and have a look at my videos πŸ™‚ chatting about MS & hopefully helping people — I’d love to reach 100 subscribers by the New Year πŸ™‚

An Ordinary Girl With MSYouTube link

Let me know in the comments how your week has been and we can chat πŸ™‚

Sending lots of love always

Hannah xx

A busy few days with MS

Hello Everyone ☺️ how are you all?! I hope you’re all doing okay. Let me know how your weekend was in the comments ☺️

Well since Thursday just gone, I have been very busy! My social life has been rather active and let me just tell you… I rarely go out and since Thursday I’ve been out everyday! πŸ˜‚

So.. Thursday, I was supposed to meet a work friend for ice cream but as I got into town she unfortunately had to cancel due to her daughter being poorly (these things happen as we all know, especially when having a chronic illness) so I popped into work (I had to go there anyway) and my other work friend had some holiday to use up so we hung out instead πŸ˜‚

We popped to the local pub (I don’t drink) but we had some food and chatted all afternoon, he was leaving the opticians we work in the next day (Friday) and I managed to convince him to have a couple of leaving drinks! I mean he’d been there for years and we all didn’t just want to say “okay bye then”

That was Thursday… Friday I saw my lovely mummy and we popped to B&M (that might be a little like Walmart) for a look around, then I went to hers for a nice cup of tea ☺️. She then dropped me into town and off I went for my work friends leaving drinks. I was home by about 8:30 so stilly managed to get a relatively early night ready for Saturday!

Saturday..

Saturday was busy and amazing too, George and I went to visit his mum on her narrow boat during the day and that was so lovely, so peaceful and tranquil and we were also greeted by a family of swans πŸ˜πŸ’– we had some delicious vegan soup and cake and then we were off home.

Saturday evening was another work friends retirement party πŸ˜‚πŸ˜‚ and we went to the greyhound racing, we had a nice table that over looked the track and saw some beautiful doggies πŸ’–πŸ˜ we all had such a good night and I was a little later so I wasn’t in bed as early as I’d have liked.. but still worth it!

Sunday πŸŽ„πŸ€ΆπŸŽ…

Yesterday my sister took me to this lovely garden centre as she said it was THE most festive one she’d been to and she wasn’t wrong! It was amazing! And the best part (apart from having hot chocolate) we got to meet the man himself! Father Christmas!! πŸŽ…πŸŽ…πŸ˜€πŸ˜€ It was amazing and we both loved it!

Ans to end my very busy weekend/few days, George and I curled up on the sofa with Arthur and watched The Incredibles 2 whilst having a cheeky Chinese!

I hope you’ve enjoyed this blog post.. my MS symptoms have been good and not too bothersome which is great! I’m a bit tired today, but I meal prepped yesterday so I don’t have to cook for the next few days! Bonus!

Much Love Always

Hannah xx