Enjoying my Hen Party with MS.

Good Morning everyone ☺️

Happy Sunday! I hope you’ve all had a nice weekend? Let me know what you’ve been up to.

So… Last weekend I had my first Hen Party with my amazing work friends. If you don’t know what a hen party is.. it can also be called a bachelorette party. A celebration for the bride before the bit day!

Yes… It was my “first” hen party because I’m having two πŸ˜‚ I couldn’t invite all of my work colleagues to the wedding because we didn’t have space, which is fine and why we had this party ☺️

All my work colleagues know about MS and know how it affects me. They are the most amazing and caring bunch of humans and made sure I was okay for my Hen.

One of my best friends who I worked with organised the party. Planning things in the afternoon/evening so that I could rest and prepare in the morning.

What did we do?

Because my friends know that I can’t do too many energetic activities they planned for me to go Punting πŸ˜€ we went to Cambridge, which is a city near us where they have a river going through it. There are these long boats called punts that you can hire to use yourself or have tours around the city.

The weather was beautiful and we had a touring punt. Just sat back and relaxed as we had our tour around the city, drinking prosecco and eating strawberries. I even had a little go a steering the punt! πŸ˜†

Everyone made sure I was okay and chose punting because it was restful for me.

After punting we started the exciting part of the night… Cocktail making!

That was such fun! And definitely where all my energy was used, having fun, laughing and just partying with my friends until quite late πŸ˜†πŸ˜€

So how I Enjoyed my Hen Party with MS?

Firstly the night before…

The night before my hen party I relaxed completely. I had an early night and just got as much sleep as possible (I know for some MSers or doesn’t feel like it helps but it does for me)

The morning of the hen party again I rested a lot. Making sure to just take it easy and get ready in good time.

I know this sounds hilarious but I allowed 2 hours to get ready for my hen.. outfit, makeup and hair.. I allowed 2 hours so that I could just take my time and relax whilst getting ready… Stressing out makes my Ms so much worse so I always try and reduce stress as much as possible.

Then during the hen party, if I needed to rest, I would sit down. My friends totally understood. Also I didn’t get completely drunk!

I don’t like alcohol much anyway and can party without it, but also it makes my MS worse when I do. So I had a couple of drinks but then I moved onto diet coke until 9pm and then for the rest of the night I was drinking tap water.

Water kept me hydrated and enabled me to continue to have a good time πŸ˜€

The final thing I will say and how I enjoyed my hen party with MS… For once I didn’t think about MS. I had a great time and knew that I would just deal with the consequences like most of us do.

Enjoy everything about your wedding if you’re planning one ☺️

Advertisements

New Store, Nana’s Birthday & Works Christmas Party! #weeklyblog

Hello gang! How are you all? I hope you’ve all had a wonderful week!

Today I am putting up the Christmas tree 😊 (well it’s officially December so it’s okay πŸ˜‚) if you celebrate Christmas when do you put yours up?

So this week has been quite busy for me, our new store opened with work so that’s definitely been keeping me busy and learning the new system, however I’m really enjoying and writing lots of notes so that I can refer back to them if I need to (you must all know by now how organised I like my life to be lol!)

We are a great team and we always work well together, helping each other along.. I always say we are like a family!

By Wednesday (my day off) I was feeling rather tired and a little drained — I had been on the go the last couple of days so I made sure that I had a restful day and relaxed as much as possible.

Thursday was super lovely and exciting! It was my amazing Nana’s birthday and I went up to visit her for the day! My Aunt, Uncle, nana and I went out for afternoon tea at this gorgeous country house called Stapleford Park which is near Melton Mowbray and we had VEGAN Afternoon tea, which was so delicious! It was such a lovely day!

Friday I was back at work learning the new systems.. it’s honestly been going so quickly the days have just flown by! I’m really enjoying learning new things and getting stuck in there and then my lovely George met me after work and we went out for dinner together 😍

There was this new Vegan restaurant in town and we wanted to try it out… Unfortunately it was not to our liking.. I had Mac and Cheese (not as nice as Madeleine Olivia’s recipe) and the rest just wasn’t cooked well enough unfortunately.. we are glad that we went but sadly won’t be going back!

(I had Mac and Cheese, Southern fried seitan and vegan slaw) I think it was just too much also.)

Saturday was our works Christmas Party ☺️ we all went out for dinner and just had such a fabulous evening! They all mean the world to me because of how supportive they’ve been with MS. They are life long friends and I wouldn’t want to be without them in my life!

And today.. Sunday. George is working today so me and Arthur 🐈 are relaxing but also…. Putting up the Christmas tree!! Now that it’s officially December I’m going to put it up, whilst having a Christmas film on in the background.. haven’t decided which one I’ll watch yet!

I hope you’ve all had an amazing week! I can’t wait to tell you all about this coming week!! So much is happening!! Stay tuned for next Sunday’s weekly blog post!

Love and hugs always

Hannah xx

Life with MS – Trip out, Moving Stores & time with my boys!

Hey Everyone! How are you all? How has your week been this week? And I hope you’ve all had a lovely weekend too!

This week for me has been good but rather hectic too. My current job was taken over by a new company and we are moving into a shiny new store on MONDAY!

Its all very exciting, although feels ever so slightly rushed and a little disorganised (we have a lot of “stuff” in our old place and our new place isn’t as big… So trying to get things in is proving a little challenging, however I think it will be much better for business and once we all know how the systems work properly and feel a bit more settled I think we will be just fine!

I think I just feel stressed because it’s all a little disorganised and out of my control really and for me since being diagnosed with MS I like to have control and I like everything to be organised (maybe it’s a little OCD) yesterday I spent majority of the day sorting and organising the best I could and I was completely exhausted afterwards.. but also happy that I managed to help as much as I could ☺️

Our old store has had many memories and has been a lovely place to work and I’m so grateful that we are all sticking together with the move as it’s the people that make it!

I also went to visit a friend on Thursday, which was nice. Had tea and cake and played chess (I’m better at draughts personally as my Nana taught me when I was little) but it was fun none the less.

We also had a trip out with work for some training, which again was a lovely day but quite tiring come the end of it.

And my George 😍 my George got a little promotion where he works and he’s now employed as a permanent professional and I couldn’t be prouder of him! 😍 Last night we had a cheeky Chinese take away and watched a film (well half of it cause it was quite long) and just had a lovely evening ☺️ of course Arthur was with us having all the cuddles too.

So, how has this week been on my MS?

Well it’s been okay so far, yes it’s been semi stressful and tiring, however I’m so grateful and thankful that I finish at 3:30pm and not 5:30pm.. I’ve been exhausted come 2:30-3pm the last couple of days and fatigue has been playing me up in the evenings but I come home, I get changed into something super cosy.. I make a nice cup of tea and relax with my boys so I’m managing things.. I know my triggers, I know I need to relax and remember my quote “NOT MY PROBLEM” because at the end of the day… It isn’t my problem.. I’m not management.. I’m not the boss.. I’m an employee and I will do as much as I can do with this move but will NOT stress myself out! ☺️

Also one final thing, this week’s YouTube video is all about my Bullet Journal it will be live on my channel at 5:30pm UK time — if you haven’t checked out my YouTube then click on the link below and have a look at my videos πŸ™‚ chatting about MS & hopefully helping people — I’d love to reach 100 subscribers by the New Year πŸ™‚

An Ordinary Girl With MSYouTube link

Let me know in the comments how your week has been and we can chat πŸ™‚

Sending lots of love always

Hannah xx

1 Year….NO Relapses!

Hey Everyone, okay so… I have 2 blog posts for you today!! (How Exciting?)

As the title would suggest today is 1 year and 1 day since my last relapse last year!! So obviously I just HAD to write a blog post about it, what I’ve done that has hopefully helped me and kept me relapse free.

As we know MS is an unpredictable condition and relapses can just simply happen without warning and without cause, but I’m going to be talking about changes I’ve made to my lifestyle over the last year, which have really helped me.

Changing my diet and becoming vegan

Now I am in no way super duper healthy 100% of the time (I’m only human) however for me since becoming vegan (Mainly for health reasons) I’ve noticed a massive change, which has been fantastic. The main one for me is dairy, since cutting out dairy I feel that really has made a massive change, as we all know and study after study show that dairy products can cause inflammation in the body and once I found this out I decided to cut it out — I don’t really miss much, vegan cheese is okay once you get used to it — I also make my own cheese sauce using Nutrtional Yeast. There have been times where I have had a little dairy but I really try to remain completely vegan and thats when I notice the most benefits.

Reducing my working hours

I reduced my working hours at work at the beginning of the year to 4 days a week and have been gradually increasing my hours and I now work 6 hours a day. I’m very fortunate and lucky that my employers are very supportive and caring, which I know some employers can be a little unsupportive, however since reducing my hours especially down to 4 days a week just having that extra day to rest and relax has made a massive difference and i have been able to be a more reliable member of the team and I love that because I love all of my work colleagues.

Reducing Stress

Now this one isn’t completely avoidable… stress happens to everyone every day, however I’ve been learning and practicing to not let it consume me. I found that when I was stressed out whether that be because of people, work or MS I found that it just consumed me and really affected me.. but now with my motto “Not My Problem” I just try and let it glide over and look out for me basically. When you have a chronic illness you just have to start looking after yourself and being a bit more selfish (I hate that word because I don’t see it as selfish!) I also try and stay off my phone more, or not get involved with what other people are doing — I hate the This Morning programme here in the UK at the moment because its just debate after debate of mostly petty things! (Just my opinion!) I don’t watch anything like that anymore because in this world I do me and look out for loved ones really. With all that, I do feel having a different approach to stress I do feel its helped with my symptoms slightly and yes I still do get angry but I don’t let it fester.

Generally trying to keep healthy

Yep thats right, I’m not and haven’t been exercising a lot or eating a completely clean diet — I’ve just been looking after myself and having lots of self care days.

So… Here’s to hopefully another year relapse free.. but if a relapse comes along…. We WILL deal with it!

A massive thank you goes to friends, family and all my online friends who keep getting me through this ☺️

The Positives & Negatives of #MultipleSclerosis

Hi everyone, how are you all this week? I hope you’ve all had a good week and weekend?

I was off work again this last week due to this horrid cold literally wiping me out! But I was back at work Saturday and I was so glad to be back!

On Wednesday 10th October it was #WorldMentalHealthDay2018 raising awareness of Mental Health.

For this blog post o thought I’d talk about the Positives of MS and The Negatives of MS… During my time of being diagnosed with MS I’ve had people say to me “just ignore it” “don’t talk about it” and lots of people telling that talking about the negatives is wrong and we shouldn’t talk about them, however I firmly and strongly believe that’s the biggest problem.. people don’t talk about the hard times of having this condition, we always bottle it all up.

I again strongly feel that the only reason why I am so positive is because I talk about the negatives of MS — I express how shit if can be and how I feel like sometimes my 20’s have been robbed from me… I feel that talking about it has made me more determined to carry on the fight and to do the things that I love to do, remember “With Every Limitation Comes an Adaption” & “Not my Problem” two of my favourite quotes!

Okay.. let’s start. The Positives of MS the main one for me is creating my blog, talking about it and joining Social Media (Twitter and Instagram) and connecting with so many people with all different Chronic Illnesses and making new friends (on Instagram we have a group called #MSSquad — most of us being in our twenties having our Squad makes up feel relatively “normal” and we can express to each other how we are feeling etc.

Appreciating everything life has to offer — so many people take things for granted and I feel that only when you’re hit with a debilitating condition that your mindset changes (climbing the stairs for example) I think people really need to start appreciating the little things more, especially their body because without it.. you will cease to exist. I work very hard every day to listen to my body and look after it the best that I can.

Also side note — whilst I write this I’m Listening to David Bowie Starman — I love this song! Have a listen on YouTube.

Discovering the Bullet Journal — I think if I hadn’t been diagnosed with MS I more than likely wouldn’t have discovered the Bullet Journal (credit to my friend Katie who introduced me) The Bullet Journal helps me in everyday life! I plan my days, meals and keep a track of my MS and it just helps to keep my life as stress free as possible.

Generally I’m a happy, positive person — I just concentrate on my own life, I find that if I start thinking about what others are doing it makes me more stressed and I stop concentrating on “me”… So now.. I just let others do “them” and I do “me”.

Now… The negatives… Like I’ve mentioned these need to be spoken about.

MS is shit… There I got the worst word out first, however it’s not the worst illness out there, Christ.. there are many worse!

But with debilitating invisible symptoms that people can’t see it makes living the condition so much harder.. for me that’s Fatigue especially when people say “oh yeah I know how you feel, I’m tired too” — mate… You have NO IDEA what fatigue is like compared to tired πŸ˜‚ — don’t get me wrong everyone is allowed to feel tired, just don’t compare your tiredness with my fatigue please.

Isolation. Yep! That’s worse, especially for someone whose in their twenties and occasionally has to say no to going out because they just need to sleep. 2016- most of 2017 were probably my worst years for this, I mean 2017 I was off with 4 relapses and at home a lot. That’s when I decided I wasn’t going to feel isolated anymore and I would join social media to find others like me who I can relate to.

Trying to get people to understand… This is indeed been a negative too, especially like I mentioned above, when people compare… Let me say… Every person with MS or any chronic illness are different.. we are all going things differently.. it has also been hard just talking to people about it in general, I mean it’s very personal thing to talk about, especially when things don’t work etc…

But my passion IS to talk about it! To everyone! If I have my stick or crutch and people ask “what have you done to your leg” I always say that “I have Multiple Sclerosis” I mean their first reaction is “oh no, you poor thing” I respond, “no I’m fine, please don’t feel sorry for me, im grateful for MS”

I talk about MS to anyone who asks me and I try to educate everyone who’s willing to listen and understand.

And… Breathe! Haha! That was a long post.. but the end is this… There are positive and negatives in every situation.. it’s all about adaption and also talking about the hard times… Remember it’s okay to not be okay… Being positive ALL the time is sometimes exhausting in itself.. I think because I’m at peace with MS (Mentally) I am able to be positive and deal with it better than before.

I hope this blog post has been informative, helpful and supportive. Please let me you thoughts below.

Lots of Love Always,

Hannah XX

When a cold strikes!

Hey Everyone! Long time no see! How are you all?!

Funny story, I actually had posted a blog post last week and I must have done something wrong because it didn’t publish and everything is written was deleted!

Anyway, here I am writing again πŸ˜‚

Last Sunday I was plagued with a dreaded cold! Started off as a head cold, which then turned into sickness and then back into the cold.. thankfully after a week off work and full bed rest, I’m finally starting to feel better.

Now.. I also say caring is sharing… So I decided to share my cold with George πŸ˜‚ bless him, although it’s been kinda good because I’ve been able to look after him now that I’m slowly feeling better, like he looked after me.

MS has also had a role to play in this week with delightful fatigue, muscle weakness and some blurred vision (all slowly getting better so I know it was all because of the virus) so it was just resting as much as I could and treating the symptoms.

Arthur on the other hand has been loving having me at home this week! The last couple of days whilst George has been poorly I’ve been sleeping on the sofa bed so that he can spread out and get some sleep (my cough sometimes keeps me awake lol) but Arthur has been living his best life on it!

I also treated myself to a new Bullet Journal which I absolutely love! It’s a Leuchtturm 1917 notebook in emerald and I absolutely love it! So whilst being off, I’ve kept myself entertained by starting it.

So.. this is a short little post for you this week as I’m still resting πŸ™‚ currently watching The Hunger Games and a out to have my tea so I hope you all have a lovely weekend and I also hope it’s restful.

Lots of Love Always,

Hannah xx

My Week Away, Family Adventures & MS Fatigue

Hey Everyone, how are you all doing? For those living in the UK are you finding the weather a little easier to cope with? ( I certainly am!) Leave me a comment and let me know how your weekend has been.

Last week I went and stayed with my Aunt, Uncle and Grandmother for the week πŸ™‚ I love spending time with them we always have lovely adventures and… nothing beats my Grandmother formerly known and Nana’s cooking!

So its been a lovely week, however my MS symptoms have been playing up quite a bit and I found myself resting quite a bit in the afternoons. My main symptom being… fatigue! I’m fine with dealing with fatigue my body tells me what it needs and its usually rest.

My Aunt and I would usually do something nice in the mornings and then in the afternoon whilst she taught the piano I would rest in my bedroom or sit in the lounge and have lovely chats with my nana — I love talking to her I always ask about things she used to do when she was my age, we are very close πŸ™‚

So let me fill you in on my adventures that I got up to…

Monday

Monday morning my Aunt and I popped into the town centre to pay the final fee to the Registry Office where we are getting married next year! How exciting!! George and I have an appointment with Peterborough registry office this week to give notice of marriage and then… we are all good to go and can get the marriage package delivered! Its all happening now!

I had to rest in the afternoon as the fatigue hit, so I spent a few hours in my bedroom resting whilst my Aunt worked so it was a win win all around — fatigue was a little better after a rest — its been horrendous in this heat that we’ve had!

It was also my Uncles birthday today so we all made a little picnic, brought a cake and went down to my Aunt’s field where she keeps her horses and had a wonderful picnic ☺️ — I also taught my Nana how to Snapchat! That was hilarious!

Tuesday

Today was a little more restful because of what’s to come tomorrow!

We had a little trip out in the morning to a little garden shop where even in the heat we’ve been having, the flowers all looked beautiful ☺️ there was also a lovely little cafe attached so of course we had a cup of coffee and a little something to eat! Delicious!

I did however paint my Nana’s (grandmother formerly known as nana) nails! She loved them and k just spent time with her, which was really great! I love spending time with her ☺️

Wednesday

Today was a big day! We all had really early nights (I slept really well) and then today we were off to see some of my Aunt’s friends who kept and trained race horses!

As you all know I’ve been to Royal Ascot and a couple of other race days, so it was really exciting to see what goes on behind the scenes.

These horses were just magnificent! All in such amazing condition, real athletes! And they were all super friendly! Considering they had never met me before!

They were well looked after and had lots of things to keep them occupied, we even got to watch a couple go on the gallops, which was so exciting! I was able to sit down a lot because my Aunt took the car around and her friends knew about my MS and that my fatigue was playing up and they were wonderful to me.

After having a look around the yard we popped into the local town centre for something to eat and a look around, it was a beautiful little town and we stopped at this vegan/gluten free cafe and honestly I had THE best pea and mint soup I’ve ever tried! And the recipe was so simple!!

We then had a little look around some shops whilst on our way back to the car, which is when I found my bargain of the week!! In the British Heart Foundation charity shop I found a gorgeous dress.. my size for Β£4.99!!!!! Amazing!! I’m going to wear this to my friend’s birthday this coming Saturday!

Once we arrived home I had to go to bed for a while as i was exhausted, however WHAT an amazing day!

Thursday

Well after our exciting day yesterday, today was spent doing very little. We did pop into town because my Aunt needed to pop to the bank.. of course we had to go for coffee and we went to the cafe where the own will be catering for the wedding — we always go there as it’s so gorgeous!

Then we came home had a lovely home cooked meal by nana and the rest of the afternoon was spent resting and looking through my Aunt’s scrap book that I made for her 60th birthday ☺️

We also had our final picnic at the field because tomorrow I went home to be reunited with my boys πŸ™‚πŸˆ — I also made the “Jus-Rol” chocolate croissants and introduced them to nana.. it was so funny! She absolutely loved them! Bless her!

Friday

Homeward bound! Today is the day I was reunited with my boys! Firstly we stopped off at a local retail store called “Boundary Mills/Downtown near Grantham for some retail therapy. I got some amazing sandals for Β£10 — bargain! Then I got home to my amazing boys and we generally relaxed the rest of the weekend ☺️

I hope you enjoyed reading this week’s blog post ☺️ sorry it’s been a bit late — technical difficulties!

Sending you lots of love always,

Hannah xx