Weekly Update:- Life with MS

Hey Everyone! How have you all been this week? Let me know in the comments how you’ve all been ☺️

So.. I’ve been fighting off a summer cold this week, in fact I had to take a few days off work because as us spoonies all know, it’s not just the virus we’re fight but also our other issues too!

My MS symptoms have been heightened anyway in the heat, but having a cold too just made them worse.. especially fatigue!!

But with plenty of rest, lot sofa fluids and good food, I’m finally out of the tunnel and went back to work yesterday and did 6 hours, which I’m really proud of! I was exhausted when I got home and in fact fell asleep at 9pm! (Yeah I was a little annoyed about that because it was a Saturday night — but when you have any other chronic illness you learn to become a lot more relaxed and chilled about life)

Copaxone is still going well, apart from the odd rash I get after injecting.. but I’ve come to realise that if I inject and I haven’t had enough fluids, then the rash is a lot worse.. so I now make sure I drink about 3 glasses of water before I inject and that seems to be work #copaxonetip lol!

Ive also been discovering some new vegan food from my local Sainsbury’s that’s delicious! Vivera have come into the shelves in some Sainsbury’s and Waitrose stores… Some of the things are quite pricy.. but worth it! I had 100% Vegan BBQ Pulled Veggie and it was delicious (made from soy) and I’m looking forward to trying more from them!

Other than that this week has been a little bit boring because I’ve been poorly.. but now that I’m back to almost full recovery (and my MS symptoms are slowly calming down) I’ll be able to get back to my adventures ☺️

I hope you all have a great week! And I’ll see you next Sunday! ☺️

Lots of love Always

Hannah xx

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Wedding Planning & MS

Hey Everyone, how are you all doing? I hope you’re having s good week! For those of you loving in the UK how are you finding the heat?

I like it for about ten minutes and then fatigue sets in and I become an extra out if Sean of the Dead (zombie movie lol) but I love sitting in the garden early morning — you can hear the birds and it’s cool enough even though the sun is shining ☺️

I’m full of cold at the moment (yes, how can you get a cold in summer!?! And no it’s not hayfever) so I’ve mainly been resting in bed because doing much else takes it out of me but I’ve had the pleasure of finally watching The Greatest Showman — have you seen it? If you you must, it’s amazing!!

Anyway, this blog post is all about Wedding Planning with MS. It’s just under a year until George and I get married (it’s still weird but very exciting when I say that! I think it’s because I’ve been a Miss all my life and soon I’ll be a Mrs! Haha I’m smiling now as I write that!)

For us we wanted our wedding to be simple, we didn’t want a big show or celebration because firstly my energy levels start to drop from about 4pm onwards lol and secondly we want it to be intimate so everyone can enjoy the day 🙂

We are getting married in my home town, which is just up the A1 near Grantham, UK.. this is the one thing I’ve always wanted, we are having the reception in my Grandmother and Aunts back garden, their house means a lot to me because it’s been there throughout my whole life and walking down her stairs in my wedding dress is something I’ve always wanted to do ☺️

George is probably the most easy going person I know ever! We both decided on having afternoon tea (who doesn’t love finger sandwiches and scones!? Lol) and his request is that we have no speeches. We will say a few words of thanks and then enjoy the afternoon before heading to London for a couple of days as husband and wife! (We will be going to Benito’s Hat in Kings Cross because we go there all the time usually, so going on our wedding day is a given!)

Now.. the planning.. you’re going to laugh.. most of the planning is virtually done!

We are very grateful and thankful that family have helped out a lot and the key word for this planning is “stress-free” well as stress free as we can make it and so far it has been. The registry office is booked, the catering is booked, the marquee is booked, wedding cars booked and all the inbetweens are coming together and my little sister has offered to make our wedding cake as her gift to us, which will be amazing!

We’ve got the table decorations, most of the bouquets (we are having fake flowers because George suffers badly with hayfever) I’ve even got my wedding dress, Vail and shoes!

When it came to the dress, I literally tried it on and that was it.. you know when you just “know” it is so comfortable, beautiful but also simple.. like I mentioned we want our day to be like us.. simple 😂🙂 we found it in a shopping outlet store called Downtown.. we didn’t intentionally go to buy it there and then.. my Aunt came with me, my mum and my sister because they were selling Monsoon wedding dresses for under £100!!!!!!! We had loads! I mean probably about 5-10 dresses.. all storming into the changing room.. the last one I tried and that was it! Sorted! (I even did the sit down test to make sure I could sit in it!)

We are having a simple afternoon tea for the reception with a glass of prosecco but no other alcohol — George and I don’t drink so we decided that we weren’t going to have alcohol and we’re also bit having an evening reception — like I’ve mentioned my fatigue gets worse in the evening, which means I can’t party until 1am in the morning 😂 but to be quite honest.. I’m completely fine with that 🙂 I want to remember every nano second of our amazing day with all the people we love the most so not having alcohol or an evening do is fine 🙂 plus people will be driving.

It’s funny when people ask me “how’s the wedding planning going” I always reply “oh it’s fine, I haven’t done much recently because most of its sorted” their face is always a picture “what it’s all planned?” Lol.. as you all know I LOVE organising and planning so I was like a kid in a candy shop doing the planning.. don’t worry George had input too it’s what we both want ☺️

Planning a wedding with MS for me is all about managing stress levels.. thats another reason why we have planned so much in advance — also places get booked so quickly! My family have been amazing with helping me to plan and doing what George and I want which makes me feel so overwhelmed with gratitude.

People laugh at me when I say that I want my wedding to be as stress free as possible — but I ask them why? Why does it have to be stressful? Only you can make a situation stressful, if you go in thinking “this is going to be stressful, then 9/10 it will be” I went into this thinking “this is going to be amazing and exciting” and guess what… It is!

The next part of the planning is just getting the little things organised like “the stationary bits” I like to call them, mainly decorations but that can wait until the new year after we’ve sent out the invitations!

So that’s it… Wedding planning pretty much sorted just the final touches really.. I think because we are having a small and simple wedding it’s been easier.. I’ve also been determined to keep it low budget, why do you need to spend £10,000 on your wedding day (sometimes more) when it’s just about two people declaring their love to family and friends and who want to be together forever.. in this life and the next. (My opinion only btw!)

I hope you’ve enjoyed the read and when the big day arrives I will try and take as many pics as I can (maybe I’ll have to pinch pics of other people lol) and will write a post about it 🙂

Lots of love Always,

Hannah xx

Father’s Day, Royal Ascot, Copaxone & Work Update

Hey Everyone, wow! I have been a bad blogger haven’t I?! How have you all been?

You know sometimes, life really does just slip past you in the blink of a moment and then suddenly a week has gone by! Well I’m hear to have a lovely chat with you all and give you some updates about what’s been going on ☺️

Copaxone

So I have been taken Copaxone to help manage my MS for just over a month now. I’ve had no side effects apart from the injection site getting lumpy and a bit itchy but that does subside. Is it working? I have no idea, people sometimes think that this drug is going to make me feel better and yes it might have helped, however I still have my MS symptoms. The drug is supposed to help with progression and hopefully prevent further relapses… So far thats working!

I also firmly believe that since I’ve changed my lifestyle a bit that, that has made a huge difference to relapsing and symptoms. Yes I still have my symptoms, but I feel I’m in a much better please to deal with them now and I’m a lot more sensible when symptoms creep back in and start giving me hell.

Self injecting is no problem, I’ve had that many injections over the years that I felt comfortable to do this. I’m one of those strange people who has to watch when I’m having or doing the injection, maybe it’s because I’m in control of it? Anyway I’m having no issues with that, which I’m beyond grateful and thankful for 🙂💉

Royal Ascot Day

Thursday 21st June myself, my sister, Aunt and Uncle attended Royal Ascot Ladies Day. It was SO exciting! All the outfits were spectacular (even the bad ones lol) the horses were beautiful and just the arena was breath-taking.

I had Wednesday before off work to allow myself to fully rest before I went because I knew it was going to be a long and busy day and I’d also booked off the Friday too, again I knew that fatigue would be worse on the Friday after Ascot so I made sure I rested fully.

Here are some pictures of my day at Royal Ascot and… I saw the Queen! 😍👸👑

Father’s Day

The weekend before Royal Ascot, my sister and I went up to surprise my dad in East Yorkshire for Father’s Day! That was a great surprise! He had no idea we were going and we his behind the sofa and door and gave him a lovely surprise when he came in from shopping.

We stayed Saturday night and came back Sunday, I hadn’t got any extra time booked off work apart from the Friday before to get myself ready for the weekend.. so Monday fatigue had started to creep in. Thankfully at the moment I finish work at 3pm so when I got home I completely rested and didn’t over do it and by Tuesday I was feeling better.

Work Update

Work is going well 🙂 I’m still working four days a week and have come to the firm decision that I would like to stay on four days a week.

I’m finding that I actually have a life now, I’m able to balance work life and home life together AND manage my MS. I usually rest fully on one of my days off and that enables me to ACTUALLY enjoy the other days off that I have. Before when I was working 5 days a week.. it would be this routine…. “Go to work,come home, eat then sleep” on my day off I never had the energy to do things so that one day was taken up and then my last day off I would try and cram in what I had missed. I started getting really down and low about it because I’m only 28!! I should be enjoying life and having fun, which is why staying on 4 days a week at work is the best chance for me to have that balance.

I am however increasing my hours. I have been working 5 hours a day over the last few months and I can now say with excitement and pride that I’m increasing my hours up to 6!!!

To some people that might not seem like a big deal, but last year before my last relapse I couldn’t even manage 5 hours at work 5 days a week before it sent me under. I was off work for 3 months and in those three months I thought “no! Enough is enough, I want to start taking my life back.. yes I can’t stop relapses, they will happen and noone will know why, but I can do everything in my power to try and limit them” and that’s what I’ve been doing.

I’m excited and ready to go up to 6 hours, my first day is Monday (ooh tomorrow!) And I’m not nervous at all.. I’m excited! 🙂☺️

I also have an appointment with my MS nurse tomorrow to discuss Copaxone, so I’ll give you all can update next week on what’s she’s said about it.

I hope you’re all doing okay and as always, leave me a comment and I’ll be sure to reply!

Lots of love Always,

Hannah xx

A lovely catch up!

Hey Everyone! How are you all doing? I hope you’ve had a lovely weekend, let me know in the comments section below!

Well today I’m off work with some kind of stomach bug (luckily it’s passing and I’m able to eat light things again!) But honestly I feel so wiped out and exhausted! I was going to try and go to work today, but just getting to the bathroom took all my energy – I’ll be back tomorrow! I’ve had lots of sleep and just running myself a nice bath to help with the pain you get following a bad tummy.

Anyway! Aside from that TMI! Lol.. I’ve had a lovely weekend this weekend.

I met a new friend Saturday night and we just relaxed at mine, caught up on Love Island — are any of you watching that? (It’s my guilty pleasure!) And had a cheeky Chinese (the Chinese we went to did tofu in soy sauce which was delicious!) And then yesterday I had my Aunt and Grandmother over to help me sort out my back garden 🙂

It looks so good! I love it so much! I love my garden in general it’s the perfect size for us and we can maintain it (well… We try lol)

This weekend I had some new fernes out in with some pretty flowers (can’t remember what they’re called but apparently they’re really hard to kill lol)

I made us some yummy vegan sandwiches with some veggie crisps and lots of tea. Then my lovely sis popped over and we let Arthur come out into the garden on his cat lead, which he enjoyed tremendously!

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hope you’ve all had a lovely weekend? I’ll be glad to get back to feeling less sicky but I’m sure I’m on the mends now.. also are you enjoying my YouTube videos? 🙂 They’re still going up every day throughout June.. if you’d like to check them out then click this link June Vlog and it will take you to the most recent vlog.

Sending lots of love and hugs always,

Hannah xx

My Birthday Adventures 2018

Hey Everyone!! How are you all!?

I know I said I was only going to write one post a week about my Social Media Detox to raise awareness and funds for the MS SOCIETY, however… I just LOVR writing!

I still won’t be replying to comments until after I’ve completed my month away from social media, but please do leave me comments and I will reply to them ☺️🙂

I’d firstly like to say that I’m in no way trying to brag about my birthday nor have I been sponsored to talk about the places I visited. I just wanted to include you all in what I got up to and also to be able to look back on this as a lovely memory.

How have you all been anyway?!

In this post I’m going to take you on my adventure of what I got up to on my birthday. I noticed that not being on social media, posting things to Instagram or Twitter all the time enabled me to have a thoroughly lovely time with friends and family! I was able to take everything in and had a great time.

So I was awoken by a good morning kiss and head bang from George and Arthur (Arthur gave me the head bang lol not George 🤣😂) and was brought a delicious breakfast of blueberry pancakes and an iced coffee

I then had a lovely relaxed morning and completed rested, having a lovely bath (one of my favourite things) washed my hair and got ready to go out with George. Last year George was poorly, so this year felt even more special that I could spend the day with him ☺️💖 we went for drinks and a little shopping (poor him!!)

We then went to mums and she cooked a replica of the “Venus” bowl that we had at Wild Food Cafe it was absolutely delicious! And I forgot to take a pic on my phone didn’t I!? I have a YouTube video going up after this social media break at the end of the month, where I think I filmed a bit of it lol.

Thursday 10th May – London Adventure

This morning I was whisked away to London with my Aunty, where she surprised me and took me to the original Cat Cafe in Shoreditch! It’s called Lady Dinahs Cat Emporium and it really was amazing!

It was set just like Alice in Wonderland (which makes sense as Alice’s cat is called Dinah) and it was all geared up for the cats. We were welcomed in, told some rules we had to follow and introduced to the cats.

They had 14 in total and they were just gorgeous! They were mainly reduced cats from people or rescued off the street and taken very good care of. If any of the cats didn’t settle or are unhappy there, then they are rehomed so they remain to have a great quality of life.

This is such an amazing place for cat lovers! Its an easy tube ride away and a short walk from Shoreditch station. With your ticket it gets you a drink on arrival which is brought to you at your table.. my Aunt as part of my birthday gift opted for the birthday package where I got a custom mug with a picture of all the cats on it and a lovely card!

I really am the crazy cat lady and it was the best present I’ve had in long time! Here are some pics of our experience and I would happily recommend this to anyone!

We then had another tube ride back to Central London where we had a delicious VEGAN afternoon tea at The Mandarin Oriental which was truly amazing!! And everything that we ate was completely vegan and so delicious!

The staff were absolutely amazing as always, we went last year and will be coming back every year! We’ve been to almost all of the hotels in London for Afternoon tea and I can definitely say that The Mandarin is now our favourite!

I mentioned that I LOVED their tea (White Apricot if you ever get a chance to visit) and they ever so kindly gave it to me as a present!! Even though I said I was going to buy it!

I had simply the best day and I’m incredibly grateful thankfully and happy! I definitely intend to go back to the Cat Emporium soon!

Things I’ve loved in March!

Hey everyone, how are you all doing? Like I always say, leave me a comment below and then we will be able to connect!

I wrote a post similar to this in January (yes I forgot February lol) and I’d like to keep this up.. I’d also like to see if it helps anyone out there because it’s really helped me to keep my positive attitude by looking back on the month and seeing all the things I’ve loved!

I document each thing that’s made me smile or happy in my Bullet Journal, this makes it easier to look back and see what I’ve been loving.

As you can see in the picture above.. there’s only been specific days where I’ve thoroughly enjoyed, so I’ve documented it down. However I do also try and make sure that every day is enjoyable whenever it may be.

Instead of writing a lot about each thing I’ve been loving, I’ll attach photos and white a little bit about each thing that’s made my day particularly memorable ☺️

Spending time with this man is always memorable! At the beginning of March it was his birthday, we had a lovely meal out with friends and got him s cookie cake, which was delicious!!

Then one Wednesday that we had off we walked to our local Garden centre (the longest walk for me since recovering from this relapse!) And when we got there we enjoyed a delicious piece of cake and a drink each… Just spending time with him and watching the world go by means the world to me ☺️

Spending time with my sister and treating myself to some goodies is always memorable and lovely.. we always have such a laugh when we spend time together! Also I just LOVE No.7 products so this made me very happy 🙂

I think this is the biggest memory from March 2018… I have been shortlisted for an award by the MS Society for their 2018 Awards!!!!! I couldn’t quite believe it when they told me, at first I honestly thought it was a joke! But nope… I really have been selected to be a finalist! I still have no idea who nominated me in the first place.. but what an honour!!

I write my blog posts, Instagram, twitter, YouTube and my Facebook group that I created with the lovely Natalie because I just LOVE to help people.. I love to feel that I’m supporting just one person out there.

When I was diagnosed, I really felt alone.. I didn’t know anyone who was newly diagnosed or my kind of age.. since starting my blog and Facebook group and Instagram lol and Twitter.. I’ve met some truly wonderful people and I just love spreading my support and positivity to all.

So I’m completely blown away by this award, but that won’t stop anything what I already do because I LOVE writing.. it’s one of my passions and I love helping and supporting people and just connecting away 🙂

Family time! I love family time! Here is a picture of myself, my mum, my sister and our beautiful Dally Tilly! All girls together! There’s always laughter when we’re together… Yes even Tilly can smile 🙂

Again, another time spent with family 🙂 here is a picture of me, my sister and our dad one weekend when he and my step mum came to visit us ☺️

Thisbis just a simple photo really.. just opening the window and watching the sunrise. Its just so beautiful and always puts a smile on my face 🙂

Thisbpicture was taken the other day when I went round to a friend’s house for tea and cake.. she set out this beautiful spread and it was simply amazing 🙂 I feel completely blessed to have such amazing and wonderful friends 😊

Now this picture is a funny memory.. but since becoming Vegan, I’ve discovered so many delicious foods to eat!! Everything in this box is vegan (had an Asda home delivery) when people ask me if I miss eating the way I used to…my response is always… Absolutely not! 🙂☺️

And my final memory for March 2018 is spending time with my beautiful boy Arthur! 🐈🐱 He always comes for cuddles in the mornings and he brightens my day, every single day! 😍☺️

And that everyone is everything that I’ve been loving through March! 🙂

I see some people’s favourites blog posts and videos and their mainly about products, which is great and I love looking at those. However I wanted to document anything memorable that I loved throughout eat month so that I can look back and….. Remember! ☺️

I hope you enjoyed the read,

Sending you all lots of love and hugs &

Happy Easter 🐰🐇

Hannah xx

A Hang over & MS

Hey everyone, how are you all doing? I hope you’ve had a great start to the week and feeling good!? Let’s have a chat in the comments below!

So at the weekend I went out with some friends from work.. we didn’t go “out, out” just “out” and it was lovely! We all stuck to the same drink… Prosecco and have some tasty food.

However, I don’t know if any of my lovely MSers out there have this too. When I drink alcohol (which is very rarely) I find that my symptoms flare up, either I get really wobbly on my feet or my arms and legs go really heavy etc.

I found myself when I awoke this morning, not with a traditional hangover, but just more tired than usual (fatigue is our tired right!?) Anyway so I thought about how can I make myself feel better and recover from this mini MS hangover without doing too much.

I’ve come up with some simple tips to help combat the hangover & MS symptoms and I found that these helped me 😊

1) Drinking Water! — I could tell that my body was dehydrated mainly because I had this full headache that wouldn’t budge.. so for the whole day I drank nothing but water and by the end of the night. I definitely felt much better. If you don’t like water you can flavour it with different fruits (a favourite of mine is lemon and lime)

2) Getting More Rest — When I woke up at around 7:30am I definitely felt an overwhelmingly feeling of fatigue/tiredness so I decided to not get up and make a coffee.. instead a took care of my body and gave it what it wanted.. sleep! When I woke up again at around 8:30am I still felt tired and groggy, however not as bad and I made myself get up then.

3) Eating Well Throughout the day We all know how hard this can be at the best of times, however studies that I’ve read shows that eating a good wholesome meal instead of the traditional greasy ones actually cures a hangover quicker!! Get my all the veggies and fruits please! I try and eat as well as I can, however sometimes we all fall off the wagon and land in the take away trolley don’t we? We are only human. Try sticking to good wholesome foods throughout the day and if you grace something not so wholesome in the evening. Don’t deprive yourself of it.. just have a little bit.

4) Light Exercising — There was a time when I hated the thought of exercise. When someone would say that exercise helps you to feel better… However, since doing light yoga everyday (5-10mins) I can actually say that it DOES help you to feel better. Even when you’re feeling groggy or can’t be bothered to do it.. once you have it does help a little 🙂

5) Having some “You” time — I’ve found that this is so important at any time really, not just with this mild hangover lol.. but taking time every day to do something that j love to do makes me mind and body feel better. Even if that’s just, writing in my Bullet Journal, or having a relaxing bubble bath.. anything that I love to do I try to do it every day!

6) Getting an early night — So when you’ve had a slightly late night the previous night, getting an early night seems like a great idea the following evening. I do find that when I do my evening routing and totally relax and get that early night, I feel a lot fresher the next day and I don’t really suffer with that dreaded second day Hangover lol!!

And these everyone are just some simple tips that helped me to manage this hangover with my MS symptoms and they really helped me. I hope they can help any of you out there too and I hope you enjoyed the read.

I don’t have any pics on this post, purely because I forgot to take any 🤣😂

Sending you all lots of love

Hannah xx