Hey everyone! How are you all? I hope you’ve had a good week? Do you have any plans for Mother’s Day?
This month is MS Awareness month and I wanted to write a post about my journey so far.
I was diagnosed with MS in 2014. I had gone numb down my left side and was admitted to hospital for a week. I think apart from waiting to find out what I had, it was the most unsettling and stressful time of my life.
Once being diagnosed with MS my first feeling was relief when I chat to people about it many of them say that they felt relief. Relief that it was nothing worse and also relief at the fact that they had actually been diagnosed with something… It starts to send you a bit mad not know what’s wrong but knowing that something is wrong, you know?
I went through a lot of highs and lows through my beginning stages of MS, I was very fortunate and lucky to have family members with the condition too. There was still something missing though, people either my age or going through the start of their MS journey to talk to.
Some of my family members I don’t think truly understood at first, I also felt that they tried to bury the fact that my fatigue levels meant that I couldn’t do certain things and that I was feeling low because of it.. also trying myself to come to terms with everything and trying to rebuild my life with MS.
June 2017 I joined Twitter and started following people who were either my age with MS or on a similar wave length and wow I’ve met some truly amazing people and some of even call internet friends!
Out of this diagnosis and a few years or just dealing with things on my own (mentally not physically, I’ve had great support) I finally felt I had built a little community and it wasn’t just people who had MS.. it’s was everyone battling chronic illness.. from ME to Fibromyalgia etc and it was wonderful to meet all these people and still be in contact too!
June 2017 was a rather dark time for me, not having certain people truly understand or bury their heads etc and battling with my own mental health demons.. I decided to set up a Facebook group for young/newly diagnosed people with MS. It was THE best thing I ever did!
I set it up with the lovely Natalie – Surviving Life’s Hurdles and so far I think we have about 130-150 members! That’s fantastic!
October 2017 I decided to change my diet (I was going through my fourth relapse of the year) and focus on a wholefoods plant based diet (No Animal Products at all) I also tried to include a lot of anti-inflammatory ingredients too for example, turmeric, cinnamon, ginger etc. And I can honestly say that I’ve actually felt healthier than I ever have and I also believe my symptoms have been slightly reduced!
NYE 2017 was when I decided to change my mindset. I decided to embark on a new motto and that motto is called “Not My Problem” I’ve spoken about it in more depth in my previous posts, however since training my mind to think this way and becoming a more positive person, i find that it’s really helped!
I don’t “ignore” my MS… Far from it! I acknowledge it every single day! I’m constantly listening to my body and pushing myself just a little, because at the end of the day our body’s will take over and MS can take control sometimes. So I try to just listen to my body! Don’t get me wrong I still enjoy myself and I’ve learnt now how to socialise with friends and manage MS! Also how to have a work life balance!
But most importantly… To appreciate every single thing and everyone! I am honestly so grateful for MS! Showing me how to slow down and appreciate this beautiful world, how to actually take control of my life and start doing what I want to do! Becoming a stronger person inside and out.. and finally I’m grateful for MS and all the amazing wonderful people I have met along the way.. whether you have MS or not! I am grateful we crossed paths!
So yes it’s MS Awareness day and I think we need to shout it from the roof tops because looking so normal majority of the time with a chronic illness definitely makes us super heros! Now… Where’s my cape! 😂
Sending you all lots of love